Every time I send a message to the rheumatic group, I get this type of
response back, and yet the message still goes through to the site. Does
anyone know what type of technical snafu this is? It repeats the original
message and then says "unknown command."
Ellen
Emma,
was fatigue your only symptom? I asked to be tested for celiac
which came back positive. Now I'm starting to suspect my thyroid is
out of wack. How did you check your body temp?
Thanks,
Michelle
Does anyone have a home remedy for a planter's wart? I had one several years
ago, went to the doctor who sent me home with some medicinal pads of some sort,
and that was that. (The wart DID disappear.) Would rather not see a doctor if
I could take care of this myself. It's on the ball of my foot.
Thanks.
Ellen
Mary Jean
I am hoping this will reach you because the email address in your
story seems to no longer be active. So the following is what I tried
to email you.
Dear Mary Jean
I just wanted to let you know that I read your testimonial back in
2001 when I casually googled Palindromic Rheumatism and your story
came up pretty early - that was in the days when you could find almost
nothing on the net about Palindromic Rheumatism. I wanted to let you
know that your story prompted me to go to the site you had mentioned,
then onto the RoadBack site, thereafter the book The New Arthritis
Breakthrough. I was at that time pretty symptom-free but I put it on
the back burner for if my condition ever flared again. I had been
diagnosed with PR around 1988 and had pretty much the same sort of
ride as you described. Terrible!!!!!! It had settled down, but I kept
remembering that my my Mother had had PR since her early 20's (only
they didnt have a name for it then) and in her mid 60's it the went
beserk. She has been on prednisone and methotrexate now for over a
decade and is paying the physical price for that.
I determined NOT to go down her road, hence my joy at finding your
story. Well my symptoms did flare up again in 2003 - so I went to my
GP and started on minocycline, pulse dose MWF. Since then, I have
halved my RF (from 692 to mid 300's) and my other markers e.g. CRP are
normal. Best of all, I have had no major flare ups for 3 years, no
excruciating pain, and no symptoms for the last 12 months. I am just
working on how I can reduce that pesky RF further so it's not hanging
around any more.
I really wanted to let you know that your post started me on a Road
to wellbeing for which I'll be forever grateful to you. Incredible to
think that I live the other side of the world and picked it up. Used
wisely, the internet is a fantastic resource! So, thank you so much
for taking the time to write that. It changed my life.
And lastly I wanted to know whether you are still doing well - and
what your 'road back' has been since 2001. I hope it's been an
uplifting one that's continued your journey back to health.
With best wishes and eternal gratitude
Lyn
Sydney, Australia
-Serena, Stress is the enemy for many illness but for those of us with
activated auto Immune diseases. It really makes us flair. Our immune
systems are in Humural Immunity (overdrive) fighting infection and
inflamation continualy. Add stress and you add to not only and increase
in symptoms of the disease from the infection but an increase in the
inflamatory cytokines. Stress is difficult for any of us to avoid, but
the answers is YES! it can make our symptoms flair even more.. Carol
Fisch, Adjunct Professor Emeritus, Laboratory Science
Our family is going through a devastating health issue with my father
in law. Since this all started, I've been so tired, and now I'm in a
flare. Do emotions bring on flares? Please advise.... I appreciate
you all.
Serena
HI, I was actually driving the bus while on ultram er and tramidol and
clonazapam and didnt have much trouble as long as i was sitting. I tell my DRs
I drive and I thought theyd know what i could take or not, but then the yearly
physiacals came around and it seems they have a LIST of whats allowed or not and
it doesnt matter how you can handle it. Ultram made me stay wide awake
(insomnia) and then thats not good for driving either, Id forget things...
Anyway I am trying to get a list fo the allowed or not allowed drugs so I can
give the list to my DRs. They do random drug testing and if you have an
accident they do mandartory drug testing and I was told by my boss it doesnt
matter if its a "legal" drug , that they would be liable if anything happened. I
drive my own car just fine, but they cant take any chances with 60 little kids
on a bus. and i do understand that. I wouldnt want my own daughters driver to
be taking drugs either.
Im not really stressing out about work, I could just quit as for the time
being I still have some income otherwise, Im just the kind of person who would
not suddenly just not show up for work one day..Id like to know way ahead of
time what my options are. actually I have alot to do at home and could even set
up some work from home (dog boarding or training) in 2 yrs i wont have that
option available. I also dont want to lose my seniority date at work (thats why
id ask for a leave instead of quiting) right now i have a nice bus run with
nice kids and if i leave i would lose my run and God only knows what awfull kids
I might end up with when I go back! (talk about stress..trying driving a bus
load of BAD kids)
As for meds, Im not allergic to any that i know of, but If theres a side
effect Im sure to get it! Like the ultram, worked GREAT for pain but I was
wide awake all nite! right now im doing tylenol except if Im haiving a bad day
ill take one tramidol in the morning only. Celebrex worked good for me too but
they said my blood work indicated a possible kidney problem and not to take any
of those type meds for awhile.
well Ive had my vitamins and ttylenol and I need to go start a very busy day
and very busy weekend. I really do too much and cant complain when im so sore
afterwards. Kathy
"
Hi All! :-) Just a note to let you know that my email address is changing
immediately to the following:
brettlisa77@...
Thanks!
~Lisa
Hi everyone:
I don't post much, but I learn so much from everyone's experience. Someone
posted earlier how they use oil of oregano along with probiotics to keep fungal
infections at bay....
Question about that......from anyone's experience....can you take oil of oregano
with probiotics? I'm thinking that the oil of oregano would defeat the purpose
of the probiotics, but not sure if my logic is correct.
Thanks
Roni
Hi group,
I started the AP again 4 months ago, Minocin 200mg/ day. Everything was going
great, but then for the last month I have been experiencing severe depression
and then a bad flare. The depression is unusual for me, and is accompanied by
a slight headache, so I feel it is biochemical. Is this fairly normal for
month 3-4 of the AP? Does it go away? I'm just needing some reassurance.
Thanks everyone,
Emma
************************************** Get a sneak peek of the all-new AOL at
http://discover.aol.com/memed/aolcom30tour
I too have asthma (in Australia) and have wondered how many others
have it. And migraines. I've heard that all three (with rheumatoid)
often appear together. Interesting.
Ros
Hi Chris! Geoff here.
You asked:
"Hey Geoff, do you live in Calgary? If so, who do you use for a Doc?"
Sorry - I'm in California. However, there is a list of doc's at
www.rheumatic.org, if that's of any help.
Geoff
Acts 2:39
Who here has been on Minocin by Lederle and switched to Stiefel Minocin
from Canada. Is there a difference in your mind and body?
Hi Gang! Geoff here.
5 minute video from University of Calgary: http://www.metacafe.com/w/538419
There is a companion article here: http://tinyurl.com/2ttmtb
Geoff
Acts 2:39
hi all, thanks for the responses. There is no one here that will give me the
AP. I did speak to my family DR also and she said she would read up on it just
so she would know what i was doing, but she said she wasnt comfortable doing it.
So the best I can do is I made an apt with a DR near DC, but theres a 2 month
wait to get in (actually 3 months but i got a cancelation apt in september) and
its probly a 2hr drive each way so i will have to take off from work. so I plan
to get on the AP as soon as i can, but it wont be till september 18th. In the
mean time, Ive had people tell me theyve done well on humira and my local DR
prescribed it so i am trying it. Ive had 2 shots so far but dont see any
difference yet. Also Im trying to deal with this without major pain drugs, I
only take one tylenol arthritis pill and use heating pads. I am still working
hard but alot slower and have to quit sooner (we are clearing brush and I drive
the tractor) , anyway I WILL get on the antibiotics but i have no choice but to
wait to see the new DR in september. Kathy
Hi All,
Just wondering if anyone who has been doing AP for a long time has had to
cycle antibiotics to maintain their effectiveness. I have been on Minocin
for 7 years and I've been experiencing trouble for the last few weeks. I'm
thinking that perhaps switching to doxy for awhile may give the buggers a
kick in the butt. I think I read about that somewhere on the RBF site.
Anyway, if anyone has any additional info on this please let me know.
Thanks,
Dee
I have just had 2 shots of humira, I have not even seen an AP Dr yet (waiting
list) so far i dont see any difference with the humira. also I had to stop
taking my prescription pain pills (tramidol) because they said i wasnt allowed
to work on it (I drive a bus) so Im taking only tylenol. I do blood work
today, then maybe I can take celebrex again. so far Im mostly doing stretches
and using a heating pad (alot) but Im still working hard on the farm and get
very sore but keep going. Oh Im also taking some hormones. Im wondering how
long before I see a difference with humira. thanks for the warning about the
lymph nodes, should i see a DR if that happens? Kathy
Hi Gang,
I just saw this on the RBF site.Does anyone here know more about it?
Lynne G./SD
http://www.roadback.org/cgi-bin/eboard30/index2.cgi?frames=no&board=Main&mode=Cu\
rrent&message=94514
<http://www.roadback.org/cgi-bin/eboard30/index2.cgi?frames=no&board=Main&mode=C\
urrent&message=94514
Has anyone ever been on this type of diet? My chiropractor suggested I
should try this because of the benefits. I have DM, fibromyalgia,
Chronic Fatigue and so forth. If anyone knows about this and what
type of foods this includes, could you send me information, website,
etc. Thanks.
Sorry, I just had to send this cartoon. Hope you all find it more amusing
then distressing . although I can see both happening. Regards, El
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Anyone taking HUMIRA? do you know if it makes your aches worse at first? I had
a shot last nite and my hands and arms seemed to get worse. I feel OK this
morning though. Kathy
Thanks Debbie,
My anti-dna was negative. My C4 was borderline low according to my
rheumy. He said the most important test for lupus was negative, but
a low C4 is indictive of lupus. I'm just really stressed about
this. I disease is more than enough for me.
I hope you find out what is going on with your rash too. Maybe we
both have some combo of RA and lupus in mild forms. Good Luck!!
Thanks for opening my thread. My name is Jennifer Bennett, and I am
conducting a dissertation study on the physician-lupus patient
relationship from a psychological perspective. I strongly believe
this research will be an important contribution to the growing body
of research on Lupus. I would appreciate it if you would take a look
at the information below, and complete the survey online if you are
eligible. Thanks for your time!
The Physician- Lupus Patient Relationship Survey
The purpose of this study is to investigate the relationship between
Lupus (Systemic Lupus Erythematosus) patients and their physicians.
In particular, the researchers are interested in how individuals'
general experience of relationships relates to their relationship
with their physician. Additional focal points include how this
medical relationship relates to issues such as how healthy patients
feel, their satisfaction with treatment, and their adherence to
treatment. It is hoped that the results of this study will reveal
information that will assist not only lupus patients, but all medical
patients in getting the critical care and attention they deserve from
their medical provider.
Criteria for patient eligibility include: (a) Being between the ages
of 21 and 60 (b) Receiving a diagnosis of Systemic Lupus
Erythematosus (SLE) at least 3 years ago (c) Having seen the same
physician three times in the last year (d) Willingness to respond to
survey questions regarding adherence to their treatment regimen,
overall satisfaction with treatment, their own health-related quality
of life, their relationship with their physician, and other close
relationships in their life.
Participation should take under 30 minutes and involves completing a
survey over the internet or by mail. All information will be
confidential. A donation of $1 will be given to a Lupus foundation
for every individual who participates.
To participate, please click on the link below (if you have trouble
opening the page, try copying and pasting the link into your web
browser):
http://www.surveymonkey.com/s.asp?u=231683246974
Or, if you have questions, please contact:
Jennifer at (310) 975-9258 or jbennett31@....
Since I was out of remission, I went back to Dr. Franco in May. Last night
I had my consult w/him. I shared w/him that I belong to this group. He
asked me to share the following:
"anyone with Scleroderma should always be on the A/P at least 5 days a week
- maybe 7 days/week depending on individual."
My rheumy had reduced my A/P to once a day on M-W-F. Thus, the trip back to
Dr. Franco.
FYI: In May when I went for the blood tests, physical, etc. they also took
me off Glucosamine. Last night Dr. Franco said I should only take Omega 3.
I go back to Dr. Franco in 4 weeks.
Sandy
Beaumont, CA
MCTD - SD prevailing, pulomonary fibrosis, etc.
Hi Vicki! Geoff here.
You wrote:
"Anyway, Geoff, I appreciate your thoughts on this. But it would help me a lot
if you could site your sources ... Not that it is your duty to educate me, but I
am just saying I am very curious about what you say. "
I've been following stem cell stuff for about 20 years, long before it became a
political toy. It's one of my various science and investment interests... but I
am not a librarian.
If you're interested in adult stem cell research, try googling that phrase. You
may also check out skin stem cells, etc. There are several published
peer-reviewed papers on the subject as well, which tend to be quite technical.
My personal habit is to read and discard. There is no benefit to me personally
in archiving.
Geoff
Acts 2:39
Hey all, my name is Monique and I'm a 27 year old dealing with
Rheumatoid Arthritis(diagnoised with JRA at age 2.) I've had the
Arthritis so long that it's run down my joints especially my hips,knees
and shoulders. So because of the damage to the joint catilage, I've had
two total hip replacements and most recently a total right knee
replacement(June 20th). So my question is, if anyone else has had a
knee replacement at a young age in particular, who could help me with
some advice on how to get through the pain without going crazy in the
mean time? And does anyone know how long a recovery can take after a
knee replacement? I asked my doctors and no one could give me a
definate answer because they say they've never done a knee replacement
on a person of my age, so like everything else I asked,my answer
was "We're not sure". I wanted to tell them off but I was in too much
pain so I decided not to,plus I was already having a horrible
experience in the hospital where I got the surgery,I didn't want to
make it any worse. Am I asking too much to want to be able to
walk "right" right NOW and not later? I have a seven year old daughter
I still need to take care of so I need to get better as soon as
possible,can anyone help me out? Sincerely,Monique
Hi Monique,
You have been through a lot for your age. I have had a hip and 2 knee
replacements. The knees are definitely much more painful in the recovery
process and you must work through the pain to do the exercises they give you
in order to get back the range. I can't stress this enough. It's a battle
to get to 90o, but once you do, your knee will become more functional re
standing up etc. and the pain will gradually decrease. Work during the
first 6 months after your surgery to get back as much range as you can. I
don't know if they have or will send you to a rehab hospital, but in any
case, yu need to find a good physiotherapist with experience in knee
replacement surgery to work with for at least the first 6 months, longer if
you can. Ice frequently and I found icing after I got into bed right before
going to sleep helped greatly to decrease the pain during the night. Take
pain medicine 1/2 hour before your therapy or exercise (which is crucial for
months after the surgery). Other techniques like visualization and
meditation for pain control are also very helpful. Don't be frightened by
the amount of pain. The pain is in most cases a normal part of the
receovery and just remember that it will decrease and the range of motion
exercises will gradually help that. I am so happy I did it because
eventually, the replacements came to feel like my own knees. You WILL get
there too. Please e-mail me privately if you have any other questions, or
just need to talk to someone whose been through it.
Linda
Keep in mind that a frozen shoulder may last as long as 2-3 years!!
Are you currently missing work, avoiding exercise, limiting your
participation in recreational activities/hobbies or simply unable to
perform simple household chores? Have you
tried medications and other useless home remedies without success?
Unfortunately, many sufferers decide to just use their other arm
instead. Big mistake! This only makes the entire problem worse
because the inactivity causes even greater stiffness and more muscle
atrophy.
http://frozenshouldersr.blogspot.com/#
Hi All
Would anyone like to comment on the disturbing data presented below?
You may or may not have heard of Minocin, yet it has been in the
spotlight over recent years, in connection with SLE. There are
varying reports regarding this drug, some say it can help the
symptoms of SLE, others say it can cause a form of drug-induced SLE.
I have come across different reports on the internet, & also have
some personal experience with minocin.
What is minocin?
Minocin/Minocycline is a treatment used for acne.
What are the reported problems with Minocin?
It has been claimed that Minocin can induce a lupus-like syndrome,
possibly even drug-induced lupus.
My experience with minocin
I took minocin as a treatment for mild acne, for approximately two
years. About a year after I stopped taking minocin, I started to get
joint pain, & other lupus symptoms. When I saw the rheumatologist,
he asked if I was taking minocin, & I explained that I had stopped
taking it a year ago. He explained that minocin could cause these
symptoms, but if minocin was the cause, the symptoms would go away
when minocin was discontinued. At the same time, minocin hit the
headlines in England, it was reported that it could cause crippling
joint pain, & lupus like symptoms, the manufacturers of the drug even
set up a helpline to deal with the problem. I was later diagnosed
with lupus, & my case seems to be unrelated to minocin. With this in
mind, I was very surprised to hear of Minocin being used to treat
lupus! I personally remain very sceptical at these claims, simply
because I know that Minocin has been implicated in causing a lupus
like syndrome.
My doctor sometimes bothers me when he doesn't listen to my needs and
acts like he knows what I'm going through. What should I do about this
problem?
Spoke to my family Dr today, she is not willing to do anything with AP or MP,
but she is willing to look into it just so that if Im doing it she is aware of
what im doing. she seems encouraging for me to go ahead to see the DR tommorrow
about the MP even though she herself wont do it. She also started talking
about fibromyalgia and a new medicine I might try for pain. I wonder if
fibromygalgia is also something that AP/MP can take care of? as of right now
they say I have arthritis. Kathy
Anyone out there?
I made an appointment to see a DR who is on the marshall list. But he "doesnt
do insurance" . He did talk to me a long time, but Im cautious because he wants
me to pay myself and wont even bill the insurance. I just felt suspicious.
Im gonna go to the web sites and see if I can find any info or a phone number
to talk to someone before my appointment so i feel more comfortable driving a
long way to see a new DR. Kathy
To All,
I also go to Dr. Hendricks Whitman, III. Here is the website for
Summit Medical group. You can see his picture as well.
http://www.smgnj.com/doctor.php?id=176
Rosa Rivera
Polymyositis
Plainfield, NJ
Could someone please be kind enough to post Dr. Whitman's address/phone number
again. I went to look for the e-mail that had the info and found that I had
deleted it. Plan on calling for an appointment, figure I won't get in until the
fall......
Thanks everyone! I don't post much, but do read most of what comes through and
have learned so much from everyone!
Roni
-----
Thanks Linda. I will try it.
************************************** See what's free at http://www.aol.com.
It's an over the counter product and there is a website where you can read
about it... http://www.024zone.com/
Linda
Hi Linda....I've never heard of O24. Is it by script or over the counter?
thanks,
Judy
************************************** See what's free at http://www.aol.com.
Unfortunately, for some people, the inflammation and pain last years and
need to be controlled. The former needs to be controlled for Minocin to
work. There are other approaches, too, that can help with pain and
inflammation like an anti-inflammatory diet, supplements like fish oil and
ginger, deep breathing exercises, Tai Chi, meditation (I've taken a special
meditation course from a pain specialist designed to reduce pain levels and
based on the work of Jon Kabat Zinn), a balance of rest and exercise and
other life-style changes. I've also used a topical spray called O24 which
helps pain/inflammation as much as NSAID's without the side-effects; it
was/is used by the U.S. wrestling team instead of NSAID's. Controlling pain
and inflammation are a necessary part of the treatment as well as a quality
of life issue.
Linda
I have had dogs for 30 + years. My very first dog had lupus, my second dog had
RH. Now 30 years later I had a litter with three dogs with DM. Now Im sick...
a neighbor is very sick, she has all kinds of things wrong with her including
lupus, and both her dogs are sick too! So Ive wondered if theres a conection
there. I will go look up mycoplasma and see what it says. Maybe i can also do
something to help my dog. Kathy
It just takes some patience. The Minocin will do the job. The fact that you've
been on Meth and Plaquenil will make it take a little longer to work. If you
can try to sleep more thru the pain. Alternate using hot and cold backs and if
you can get a gentle massage out of someone in your family willing to get those
muscle knots out, that would be a boon. I also took a 1/2 of a 5mg tab of
Valium before going to bed on ocassion and that helped me relax. That is a
muscle relaxer and worked for me. 2.5 mg is a tiny dose and I only took it when
the pain wouldn't let me sleep. Now I can fall asleep easily and the pain is
gone. I've been on Minocin for 18 months and just went into remission in May.
Still taking it. Dolores
DebraARuperti@... wrote: Thank you for that.
I have not found a Doc yet, but a physician I work for has written a script
for Minocin for myself. I want to start taking it but know that something is
needed for the pain. Plaquinil and methotrexate does not do the job.
************************************** See what's free at http://www.aol.com.
Forgot to say that Minocin also acts as an anti-inflammatory too.Dolores
Ken and Linda <kglg@...
It is my understanding from Henry Scammell's book that Dr. Brown believed
medications needed to be taken to reduce inflammation so that Minocin could
work effectively.
Linda
Yes, I read that too, but only for a very short time. Dolores
Ken and Linda <kglg@...
Henry Scammell's book that Dr. Brown believed medications needed to be taken to
reduce inflammation so that Minocin could work effectively.
Linda
Hi, I am new on here... looking for some answers to some questions that may be
life and
death. I have a husband who has RA as well as degenerative disks, PTSD,
chemical
sensitivities, probably fibromyalgia, and more ... the chronic pain has been
24/7 for over
eight years now... the only thing that is helping him keep a bit of sanity is a
pain patch and
it is not doing the job well .... He is sure he is going to die soon, he is
scared ... and I am
being convinced of it myself and i am scared also ... if nothing else the pain
is going to
drive him to drastic measures. We have been down the epidural and other needle
routes,
pain psychologists, yoga, etc. and on many pain killers in the past which have
all led to
many side effects...
Anyway, Hubby entered the list of his symptoms on Goggle and up popped
mycoplasma -
I remember him having pheumonia about the time we were married - 8 years ago.
He said
he used to have many bouts of bronchitis... no longer smoking and living in
clean air so
that has not been an issue for awhile. He is also a veteran. He is 58 and not
overweight...
eats a fairly healthy diet compared to most Americans.
It was exciting to find the mycoplasma information but now we are struggling to
find a
doctor AND to get tested I have read that supplements like cod liver oil and
antioxidants
mess up the tests.... plus if I take him off the supplements we are taking a
step back to
even worse health.... He also is finally able to eat like a normal person since
we started
him on a course of anti candida stuff... no more constant stomach upset and
throwing up
a couple of times a month.....
How do we find a doctor we can trust? He is on Medicare... any possibilies of
getting them
to pay? How do we find a way to get tested or is it a waste since he has been
on so many
supplements for so long? Do we just move on without getting tested? He has
reached
the end of endurance I fear and doctors have basically let him down..... even
though we go
to a good pain guy now, I am getting frustrated when the answer seems to be...
although
not said actually.... learn to live with it.
I have rambled but I am getting desparate at this point.
Rhea
Thank you for that.
I have not found a Doc yet, but a physician I work for has written a script
for Minocin for myself. I want to start taking it but know that something is
needed for the pain. Plaquinil and methotrexate does not do the job.
************************************** See what's free at http://www.aol.com.
It is my understanding from Henry Scammell's book that Dr. Brown believed
medications needed to be taken to reduce inflammation so that Minocin could
work effectively.
Linda
Discussion on the use of long term low dosage of antibiotics for the treatment
of auto-immune diseases such as Scleroderma, Lup
It is my understanding from Henry Scammell's book that Dr. Brown believed
medications needed to be taken to reduce inflammation so that Minocin could work
effectively.
Linda
Hi group,
Perhaps some of you might like to try and help Nancy?
Thanks, Chris.
Begin forwarded message:
I was wondering if anyone has tried Lyrica. My dr wants me to try it
for fibromyalgia symptoms, as well as for neuropathy in the feet. I'm
hesitant because of possible side effects such as sleepiness and weight
gain. Any feedback is appreciated :)
Carol E from NY
I continue to receive these posts from Kangto 44 in my email box but am unable
to read anything at all...can someone help me...
Debbie
Did anyone else get this survey? I'm not sure where he got my email address
from. I don't use any injectables but if someone else wants to share your 2
cents with him, have at it.
Hope everyone's well,
Dee
_____
From: Freiberg, Gary [mailto:gary.freiberg@...]
Sent: Wednesday, June 27, 2007 12:36 PM
To: ljdsll@...
Subject: RA Product Devleopment
Hello Dee,
My name is Gary Freiberg and I am studying the medication delivery (syringe
and autoinjector) needs of individuals afflicted with RA or MS. If you feel
comfortable sharing your thoughts and opinions regarding the administration
of your medications would you please complete the attached survey and send
it back to me? Your thoughts and opinions will be used in the development
of new drug delivery systems that are based on needs of the end user instead
of the Pharmaceutical companies' opinion of what is good for the end user.
Other than your email address (so that we can communicate with each other
regarding the survey) no other personal information is going to be asked of
you and once the survey is complete I will delete your email address unless
you would like to stay in contact.
Hi all, I am going to do the humirs injection tonite the first time, I am a bit
nervous about wether it will make me sick (everything makes me sick) I dont care
about the fact its injected, I just dont want any new side effects. anyone had
experience with thisa drug? Kathy
my bp has been low before Mp - averaging 90s over 60s. when i started
benicar it did go down. has gone as low as 76/39 but always recovers. i
almost blacked out a few times so you have to be careful when getting up
from standing or sitting. but people report that as time goes by bp
recovers and they don;t feel faint or dizzy anymore even though they
continue to take benicar at 3-4x the normally rx'd dose. seeems that
benicar is actually a pretty poor hypertensive med. you can ask on MP
site to find a doc in your area who will do MP with you.
monique
Handsome and Cool Bikers looking for fun! Chat with them here:
http://bikerguy.aq.googlepages.com/bikerboyz.htm
Thanks /cooky, Will defintely do if I can find it. Dolores
C Stonkey <cookee1@...
Just to poke my nose in here.. There was a product OTC called Di-Gel.
It was
wonderful for that watermelon belly feeling. I have not been able to find it
anywhere...I'm sure they took it off the market. But if you were to find
it.grab a pkg and let me know where you found it!
Cooky
_____
Just to poke my nose in here.. There was a product OTC called Di-Gel. It was
wonderful for that watermelon belly feeling. I have not been able to find it
anywhere...I'm sure they took it off the market. But if you were to find
it.grab a pkg and let me know where you found it!
Cooky
_____
Hi Gang! Geoff here.
Please snip off those portions of prior emails that are not directly related to
your specific response. This is routine email etiquette, called "netiquette"
and has been the accepted form of written communication in email since its
inception. It is both courteous and considerate to all who read these emails.
In this way, only the person to whom the historic information is needed must
invests their time. The other 2,000+ members of the list do not have their time
taken needlessly either reading nor scanning through.
For further information on the common courtesies of Netiquette, please click
http://www.albion.com/netiquette/
HTH
Geoff
Acts 2:39
Before I found this solution, I battled arthritis the same way you
are doing today - with over-the-counter products, expensive
prescription drugs, and strict diets - hoping against hope that it
would disappear one day.
Unfortunately, I can tell you from experience that those solutions
will not work in the long run, as all they do is provide relief from
the symptoms. They do not get rid of the arthritis at the root of the
problem.
Today, instead of avoiding any physical activity because of the
swelling, stiffness, and pain, I break into a great big SMILE because
I am able to go walking with my son, work in my garden, or go
shopping anytime I feel like it, without any apprehension what-so-
ever.
Those who do not have arthritis or have to deal with it will never
understand. To them it's like, "What's the Big Deal?"
Well, no matter which way you look at it, ARTHRITIS HURTS YOU!
Emotionally, psychologically, and physically, it hurts on a daily
basis.
It can and will cause pain at any point in your day, and the more you
worry over it, the worse it often becomes. It creates low energy
levels and a frustration inside of you, hindering you from enjoying
and sharing your talents and abilities with others.
It is painful and can cause severe physical and emotional scars, that
remain with you for the rest of your life.
http://arthritisgva.blogspot.com/#
I'm just curious as to how much medicine other people take. I myself
take 17 medications daily!!!!! I also have an emergency asthma inhaler
which I fortunately don't need to use that often. I also take 3
supplements each day: acidophilus, Vitamin D, and Magnesium. It just
blows my mind about how many meds I take. When I saw my GI dr, he said
how do you manage to organize and take all that. I laughed bec I also
organize the medicine for my 84 year old father and 85 year old mother
and a lot of the time I either give it to them or call and make sure
they take it. Amazingly I have been able to work a limited # of hours
per week for the past few years. That alone shows me that I am doing
better :)
Carol E from NY
PS--I'm a night owl but I better get to bed before I end up sleeping
today away!
Hi Everyone- If you already completed the survey for my dissertation
study, thanks a million! If not, I'd truly appreciate it if you'd
consider it:
The Physician- Lupus Patient Relationship Survey
The purpose of this study is to investigate the relationship between
Lupus (Systemic Lupus Erythematosus) patients and their physicians.
In particular, the researchers are interested in how individuals'
general experience of relationships relates to their relationship
with their physician. Additional focal points include how this
medical relationship relates to issues such as how healthy patients
feel, their satisfaction with treatment, and their adherence to
treatment. It is hoped that the results of this study will reveal
information that will assist not only lupus patients, but all medical
patients in getting the critical care and attention they deserve from
their medical provider.
Criteria for patient eligibility include:
(a) Being between the ages of 21 and 60
(b) Receiving a diagnosis of Systemic Lupus Erythematosus (SLE) at
least 3 years ago
(c) Having seen the same physician three times in the last year
(d) Willingness to respond to survey questions regarding adherence to
their treatment regimen, overall satisfaction with treatment, their
own health-related quality of life, their relationship with their
physician, and other close relationships in their life.
Participation should take under 30 minutes and involves completing a
survey over the internet or by mail. All information will be
confidential. A donation of $1 will be given to a Lupus foundation
for every individual who participates.
To participate, please click on the link below (if you have trouble
opening the page, try copying and pasting the link into your web
browser):
http://www.surveymonkey.com/s.asp?u=231683246974
Or, if you have questions, please contact:
Jennifer at (310) 975-9258 or jbennett31@...
hi vicki
See this for info on the MP:
http://www.marshallprotocol.com/
benicar is to be taken 40 mg every 6-8h and then differnt combos of
mino, zithro, and clindy as your progress thru the different phases.
dr. blaney in vancouver is the best doc for MP. he does phone consults
if you are far away.
monique
Tom was in his early 50's, retired and started a second career.
However, he just couldn't seem to get to work on time. Every day, 5, 10, 15
minutes late. But he was a good worker, real sharp, so the Boss was in a
quandary about how to deal with it. Finally, one day he called him into the
office for a talk.
"Tom, I have to tell you, I like your work ethic, you do a bang-up job, but
your being late so often is quite bothersome.'
"Yes, I know Boss, and I am working on it."
"Well good, you are a team player. That's what I like to hear. It's odd
though, you're coming in late. I know you're retired from the Air Force. What
did
they say if you came in late there?"
They said, "Good morning, General."
************************************** See what's free at http://www.aol.com.
Dear Group,
Finally a drug we can enjoy. I first heard about this study on the
ABC Evening News, then found this web link:
I also go to Dr Whitman in NJ. Of all the rheumatologists I've seen
(and I've seen quite a few), he is the best. I've been seeing him for
about 10 years. I can't say I'm cured but at least I was able to return
to work part-time. He prescribes doxycycline for me (100 mgs, 3x's a
week) and also benicar (10 mgs per day). I don't know if he will
prescribe the Marshall Protocol, since I never asked him about it, but
when I asked for the benicar, he readily presribed it for me. He takes
my concerns seriously.
Carol E from NY
Hi Gang! Geoff here.
Gee, it seems a real hornet's nest has been stirred up. We haven't had one of
those for awhile -- but never is a good length of time to have another, i.e.,
they don't help anyone and should be taken private.
On the question of stem cells, our major disconnect in the political arena is
really one of PUBLIC IGNORANCE, not political ignorance nor lack of will not
desire to harm. There is a concerted effort afoot to make believe that the only
stem cell research of use is that wherein the cells are collected from dead
babies.
That is not true.
In point of fact, adults' stem cells are proving more valuable, more viable,
more available and more alterable than those collected from either dead babies
or spent placentas. It is a fascinating area of scientific research but hardly
one that NEEDS political champions. That is, from a medical perspective.
The only reason it has gained political traction is that it lends support to
abortion-on-demand and engineering-for-death. Obviously, for the uninformed,
this gives rise to some very heated discussions, both from the abortion
perspective and the healing one.
Since it is both unnecessary and of less benefit to use the stem cells of dead
babies and spent placentas, perhaps the real question to ask is not whether or
not one should support stem cell research, but why stem cell research has become
a divisive political football and who stands to profit, both in power and money,
from it being one.
When you answer the question of profit, then you will know the real issue at
hand. I guarantee: it is not stem cell research per se.
Regards,
Geoff
Acts 2:39
I had run across some lists of foods that seemed most likely to cause
inflammatory responses, but found that my own list was not the same. I think it
totally depends on your situation and just what sort of defect or bug is causing
the "leaky gut"....could be that if it is caused by candida, there is a stronger
reaction to certain types of foods, etc.
For me, problem foods included any sort of tomatoes, corn (popcorn was much
worse than cooked corn, for whatever reason), chocolate (that was painful!), all
pork products, zucchini, eggplant, peanuts, peanut butter, and others that I
just don't remember. But some that were on the list that everyone says tend to
cause flare-ups....wheat and wheat gluten products, sugar, did not have any
effect. So you have to do things by trial-and-error, keeping a precise list of
everything you eat, and noting any flareups that occur within a few hours of
eating. After a couple months you can really hone in on the foods that offend
your system.
By the way, saw my rheumatologist yesterday. Because there are several side
effects that come from long term minocycline use, and because I seem to have the
flare-ups under control now, he recommended switching to Doxycycline, 100mg once
a day. It is cheaper (you can buy it at Pet Supply places online for about $10
per bottle of 100 capsules....). He noted that if I get a flare-up, to increase
to Doxy twice a day, and see if it can squelch the problem. If Doxy does not
work, we can go back to Minocycline. I had a slight reaction of a swelling in
some finger joints which I am 90% sure was due to the Minocycline, when I was
taking it twice a day (100mg x 3)...but when I dropped down to once a day, that
swelling receded. Interesting, but I can easily tell the difference between
that swelling and the RA swelling...totally different feel in the joints...the
RA is excruciatingly painful, the other is just bothersome.
I will be seeing him again in Sept, and we will do another complete set of
blood tests, and see if the RA levels have dropped. By then it would have been
9 months.
I still have to solve the gut problem. Until that normalizes, I am just
stopping the reaction to the cause of the problem. Taking prebiotics,
probiotics, garlic, yoghurt with all sorts of good guy bacteria....but I need to
get more aggressive, as that is just barely keeping things semi normal. I think
I will try another course of garlic ....eating 5 cloves per day for a week, if I
can take it. Then start with the wormwood capsules, and other herbal
anti-microbial stuff. When the gut is normal again, then I know this other
problem will disappear.
Lots of great books out there....get them and read them....take what you can
from each.
Good luck...
mousey
Thank you Julie for expressing my beliefs on bashing the good ole USA.
If anyone hates America this much, they need to move out. I too, enjoy
and love the info given on our diseases and I would appreciate no more
political statements. Believe me...I could debate anyone about
politics....but not here.
Susan Mitchell
Congratulations! What a pity though that you had to pay and to add insult
to injury that firm gives kickbacks.
I do not understand why physicians do not know how to fulfill their part in
the application process. Someone who is/was on the list was approved in two
weeks and I was in three weeks. My rheumatologist was head of Rehab. and
told me exactly what I needed to document.
Denise
This is what is meant by protectionist legislation...
Source: Mercola Blog
Americans currently pay the highest prices in the world for prescription
drugs. Canadians, Europeans, and even citizens of Mexico pay only about
one-half to as little as one-tenth the price paid by Americans for the very
same chemicals. Drug companies actually import many of the raw materials
used in drugs from other countries, meaning that some U.S. medicines are
already sourced from countries like the U.K. and Germany.
Drug companies mark up their prescription drugs as much as 569,000% over the
price of the raw materials. A typical markup is more in the 30,000% -
50,000% range. Retailing pharmaceuticals is hugely profitable. There is no
business in the world with more profit built into the retail price of the
product. How many business owners would like to have those profit margins?
The purpose of restricting Americans from buying drugs from other countries
is to enforce a medical monopoly in the United States, forcing consumers to
purchase drugs at the highest prices in the world, further padding the
profits of powerful and influential pharmaceutical corporations who exert
strong influence over the U.S. Congress.
What does really make you sick? Is it bacteria? Is it virus? Is it
your sloppiness? Is it hereditary or genetically? There are various
reasons and causes that make you sick. However, there should be an
answer on how to escape from getting such maladies, if not, minimize
it.
Some people are really healthy and some look so weak. We envy rich
and healthy people when we get ill. Some look so sick due to
financial stress. Stress is also a cause of illness as you know.
Whatever the causes are, there must be some solutions to minimize
getting illnesses. Yes, there are.
Do you believe that brushing teeth is one way to eliminate many kinds
of diseases? Brushing your teeth may prevent serious illnesses such
as diabetes, cancer, heart disease, kidney, and liver troubles. Is it
possible to clean your blood and prevent some heart disease out of
your toothbrush? Yes, it is possible. It is just like a good prayer
to God when you brush your teeth :) .
Many illnesses we know are maybe the result of "periodontal (gum)
disease" without our knowledge or undetected. Of course, such
periodontal disease goes through the bloodstream to other internal
organs in the body, and one day it may lead to unexpected illnesses.
Most of us do not think that health problems come from our mouth or
teeth. However, most dentists know about it. Brushing teeth is a very
effective means of preventing periodontal diseases.
Of course, brushing teeth does not mean that you won't suffer from
diseases like arthritis, diabetes, cancer, and AIDS. What we mean is
it will help you minimize contracting such maladies because as I said
it is just like a prayer to God. Brushing teeth daily is just the
same as concentrating spiritually as well as mentally. Do you notice
that your blood pressure goes down, sugar contents in your blood goes
down, and your heartbeat calms down, after brushing your teeth? It is
because when you are concentrating to something just like that
of "Yoga" or listening to a classical music and of course brushing of
your teeth, your brain wave becomes calm without distortions.
Of course, there are hundreds of factors involve when getting sick.
Food intake, works you do everyday, and stress you shoulder everyday
could be factors of getting sick.
FASTING
We all know about "fasting". Almost all religious sectors seem to
have a certain session for fasting. What does fasting means? Fasting
from food. Fasting from sex. Fasting from drinking liquor. Fasting
may mean detoxification of all evils.
In an ancient Chinese medical and Buddhism book, it says that fasting
will stop or slow the function of cells in the body, and heals all
wounds physically and spiritually.
In Japan, there are temples and fasting centers where they train on
how to start fasting. When I was 13 years old, I was thin, weak, and
sickly boy. My mother recommended me to be in a fasting center for 40
days. In the center, they taught us that fasting will stop the aging
process in the body including viruses, bacteria and other toxic
objects that invade our body. They told us that in 40 days, viruses
and bacteria will die out and our body will be detoxified and will be
spiritually united with the will of God. However, since I was
underage, I was allowed to do 20 days fasting.
When I became 17 years old, I went back to fasting center and there I
learned a lot and became interested in knowing traditional Chinese
healing technology.
Now, educating yourself through these ancient medical knowledge, you
can minimize or avoid getting sick. In fact, in 71 years of my life
including my brothers and my family, we have never suffered from such
dreadful diseases so far. Because we do not think bad to others, we
do not do bad to others, we do not have bad habits, and we do not eat
crude food. We do not smoke. We do not gamble. We do live in a decent
way in a decent place.
At least, you now understand what really make you sick. When you are
calm and your brain wave is calm, thus, sending proper signals to
your body cells, you won't get sick. That is right. For you not to
get sick, your brain must emit or send proper signals to your body
cells. It is as simple as that. But it is quite a difficult task for
most of us, and yes, we know that.
Let's brush our teeth religiously every morning and evening. Don't
think bad to others. Do good to others. Eat the right food. Don't
drink too much. Make yourself right.
In conclusion, what does really make you sick? The answer seems to be
your "aggressive" and "unreligious mind" of your distorted brain wave
that controls the body cells. Now, at least, you can avoid
contracting some maladies, if you understand these things.
I've been investigating the self administration of drugs via prefilled
syringes vs. autoinjectors and I was wondering if any of you would be
willing to discuss the pro's and con's that you may have observed
while using either methods?
Gar
Hi guys,
I haven't emailed in a while, but I hope everyone is doing well. Keep the
faith. I have been on minocin for almost nine years and I am doing well. I
acheived remission once, and I am on my way back to remission after being off of
minocin for some time due to hyperpigmentation. RF is down to 14. Yippie.
I have a friend who is experiencing pretty bad hyperpigmentation on Minocin
and wants to switch to doxcycline. I have some questions about
Dorxy/Vibramicin:
1) What is the difference between Dorxy/Vibramicin?
2) Is there a difference between generic doxcycline and Dorxy/Vibramicin? I
know there is a difference between minocin and generic minocycline. I personally
didn't fair well on generic doxycycline.
3) Is Dorxy or Vibramicin pelletized to be time release like Minocin?
4) What is the proper doseage for Dorxy or Vibramicin? The friend is on 100
mg of minocin per day. Should she take 200 mg of dorxy/vibramicin since
dorxy/vibramicin is not as strong as minocin?
Any advice is appreciated.
Good Bless and Keep Your Spirits Up!!!!!!!
Hi Carolyn. I have not read the posts on this group for a long time,
but I'm back reading now, and I saw your post. I came across an
approach for acid reflux that works very well for me, and apparently
others. I read it in a natural health newsletter years ago, and I'm
sorry I don't have the author or title.
The approach to resolving acid reflux is to avoid liquids with meals.
Liquids generally dilute the digestive acid in our stomachs, and
cause incomplete digestion of food. Then, I guess the mechanism is
that the stomach produces even more acid over time, trying to
compensate. Not sure about that part. What I am sure about is that
this works and I have always seen definite results within three days
of getting back on this routine. I try to stick with it because I
want my supplements to get digested and used by my body, as well as
my food.
No water, juice, milk, coffee, tea, or any liquids for one-half hour
before a meal. Then eat your meal and do not drink liquids with it.
Then no water etc. or any liquids for one hour after the meal--let
the stomach digest the food first.
Thought I would share this since it's been so helpful to me.
Cathy
Hi,
I bought minocycline from www.cutpricechemist.com. The price was very good
and the product works.
Thanks,
Gloria
I am hoping someone here can help me understand something on my MRI
report because I don't feel my rheumatologist explained it clearly. The
MRI on my neck shows "mild posterior disc/osteophyte complexes causing
mild spinal stenosis at C3/4, C4/5, C5/6 and C6/7."
The dr said that disc/osteophyte complexes are little spurs coming out
from the bone as a form of osteoarthritis--a slow degenerative change.
However, if they are bone spurs, why didn't they show up in the x-ray
of my neck. X-ray quality was good, and x-rays from the same facility
on the same date on my lower back did show spurring on lower vertebrae.
So if spurs showed up on the lower back x-ray, but didn't show up on
the neck x-ray, I think the disc/osteophyte complexes in the neck MRI
must not be made of bone.
Are disc/osteophyte complexes bone, or could they be soft tissue cysts?
Thanks.
Cathy
So, if I'm taking minocycline, generic for minocin, will it work for
me?
I started having flareups in May of 2006. Had to wait until August
to see the Rheumatologist, who prescribed large doses of NSAIDS, and
did all the blood tests. Which confirmed the RA. Three months later,
after I had done a LOT of online research and reading, I met with him
again. I had started working on trying to correct problems with my
colon, as "leaky gut" is pointed out as a strong causative factor in
RA. I had also been compiling a list of foods that seemed to trigger
the flare-ups. And I had been reading all about Minocycline. I asked
him to prescribe the Minocycline. He surprised me by saying he would.
We discussed the way in which that antibiotic works against RA...he
seemed to feel that it simply depressed the inflammation response,
while what I had read indicated that it went after certain types of
bacteria in the inflamed joints. I started taking 100mg twice a day,
and in TEN DAYS the inflammations subsided. Within one month I was
able to eat all the "forbidden foods" without any problems. I stayed
on it for about 10 weeks, then had a sudden problem with spotting and
a bout of the flu. So I stopped. It apparantly had an effect on the
HRT I was taking. But the flareups had not come back when I saw the
Dr. again 10 days later, so we decided to have me wait and see how
long the "cure" lasted. In all, it took six weeks for them to start
up again, (the flareups came back only after I had eaten something
that was apparently riddled with bacteria, and gave me intestinal
distress for three days....) and I went back on the minocycline. I
have now dropped back to taking just one per day, only six days a
week, and am still free of problems, everything normal. I can eat any
food I want. I am still working on that gut thing, which is
definitely the source-causative agent.
I did find that a couple of knuckle joints had started to swell up
after about a month on the two-a-day dose the second time, and going
down to one a day corrected that. I could tell that the issue with
the knuckles swelling was not an RA thing...it was just different,
but very noticeable. and they say that joint swelling can be a side
effect. But no other joints have given me any problems, and the
knuckles all have gone back to normal sizes. It took about a week.
So far, so good, and it has now been a year since this started, and
December since the minocycline...which seems to be working.
Regards
mousey
OK folks. Can anyone explain to me the differences or reasoning between the AP
(antibiotic protocol) and MP (Marshall Protocol) Im trying to research this so
i can have an intelligent converstation with my DRs. kathy
Kamran,
Most doctors in the US, and other places, are not enthusiastic about
antibiotics for rheumatic diseases either. That's why we have to educate
ourselves and take the initiative to obtain the treatment of our choice,
AP. This list and the website www.rheumatic.org are here specifically to
support us in that endeavor. I encourage you not so sit back and let
someone else make the decisions concerning your health.
Take care,
Ute
Hi, my DR today said to stop taking the methotrexate (yeah) but now he wants me
to try Humira. Anyone have any comments about this med before I go get it? He
said my bloodwork was showing some kidney issues and that I may have had an
issue before he even started the methotrexate and I should stay away from
celebrex, ibuprofren and aspririns for ever... I felt no better on methotrexate
and maybe even worse (not sure cause I have other issues to deal with) but my
hands still hurt and other parts too, only the pain pills seems to help. So he
says to start the humira and see if that helps. he said if it doesnt we can just
go with the pain pills alone. I also see my endo next week, and Ill tell him all
this too, cause Im not sure how my hormones are affecting all this arthritis.
kathy
I went to the pharmacy yesterday and they told me that mino was no
longer available except in the Generic form. I asked if it was no
longer available for them or for anyone and they said no longer
available anywhere. Has anyone else heard this? Will the Generic
(which is much cheaper) help me?
Linda,
I am still trying to deal with most of them. I am on
Flagyal, and am going to start Doxcy MWF today. The
menicen caused intolerable side effects (brain fog,
dizzy) so I had to stop. Went to alternative doctor
today, but was not satisfied. Only wanted to push the
supplements.
I am interested in the Adrenal complexes others are
telling about, and will discuss this with my GP soon.
The diabetes factor of light headed-ness and having to
eat every 2 hours is most bothersome.
My RA factor is very high also, so I have to do
something.
* * * * * * * * * * * * * * * * * * * * * * * * * * *
MYCOPLASMA REGISTRY REPORTS
for gulf war syndrome & chronic fatigue syndrome
© 2007 Sean Dudley & Leslee Dudley. All rights reserved.
Hi Linda! Geoff here.
You wrote:
"For how long did you take the adrenal complex and what tests did you have to
determine that it was an Addisonian crisis and that you needed the complex?"
This is going to surprise some people... the Dr. told me. :-) I don't know
what the lab tests were, I just followed his instructions. I was on the complex
from March '06 through about November, then off and on until around June this
year. Subsequent tests (they do 2) showed output low in the afternoon so I
adjusted for that. Most of the benefit came w/in 120 days.
HTH
Geoff
I'm with Jean in the interpretation of the original email. I get 300+ when I
I believe ... that just because two people argue, it doesn't mean they
don't love each other. And just because they don't argue, it doesn't
mean they do.
I believe ... that we don't have to change friends if we understand that
friends change.
I believe ... that no matter how good a friend is, they're going to hurt
you every once in a while and you must forgive them for that.
I believe ... that true friendship continues to grow, even over the
longest distance. Same goes for true love.
I believe ... that you can do something in an instant that will give you
heartache for life.
I believe ... that it's taken me a long time to become the person I want
to be.
I believe ... that you should always leave loved ones with loving words.
It may be the last time you see them.
I believe ... that you can keep going long after you think you can't.
I believe ... that we are responsible for what we do, no matter how we
feel
I believe ... that either you control your attitude or it controls you.
I believe ... that heroes are the people who do what has to be done when
it needs to be done, regardless of the consequences.
I believe ... that money is a lousy way of keeping score.
I believe ... that my best friend and I can do anything or nothing and
have the best time.
I believe ... that sometimes the people you expect to kick you when
you're down, will be the ones to help you get back up.
I believe ... that sometimes when I'm angry I have the right to be
angry, but that doesn't give me the right to be cruel.
I believe ... that maturity has more to do with what types of
experiences you've had and what you've learned from them and less to do
with how many birthdays you've celebrated.
I believe ... that it isn't always enough to be forgiven by others.
Sometimes you have to learn to forgive yourself.
I believe ... that no matter how bad your heart is broken the world
doesn't stop for your grief.
I believe ... that our background and circumstances may have influenced
who we are, but we are responsible for who we become.
I believe ... that you shouldn't be so eager to find out a secret. It
could change your life forever.
I believe ... two people can look at the exact same thing and see
something totally different.
I believe ... that your life can be changed in a matter of hours by
people who don't even know you.
I believe ... that even when you think you have no more to give, when a
friend cries out to you -you will find the strength to help.
I believe ... that credentials on the wall do not make you a decent
human being.
I believe ... that the people you care about most in life are taken from
you too soon.
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in error, please notify the sender immediately by e-mail and delete all copies
of the message.
Hi everyone,
I just wanted to ask if people could please delete all but the most
relevant parts of the email they're replying to. I have limited
mailbox space and often cannot receive large emails, or they prevent
other emails coming through. I know I can go to the website to read,
but because of time limitations I prefer to read all the emails at
once from my mailbox.
Thanks and blessings,
Ros
HI, could a bad skin infection (of my hand) have started my arthritis? I had a
BAD problem a year ago and it took more than 6 months to finally clear up the
skin infection on my right hand. Now my right hand is the hardest hit with the
athriris, but now also I have problems with my right shoulder and right hip....
they said i have psoriatic arthritis. But Im just wondering what the infection
had to do with it, at that time the Dr said I had eczema (also auto0immune) but
it ended up it was a fungal infection which did clear up and has not come back,
it covered my whole right hand. Kathy
Carolyn, would you mind telling me how your dealing with the symptoms caused by
prednisone? I expect I may be experiencing something similar after being put on
a large dose (for me) to open my airways in January when I had the flu and
bronchitis.
Thanks,
Linda
John,
Thank yo so much for the information. It seems like another angle
to I can approach this from. Thanks again and best to you too.
Michelle
Bonjour Mr P.K . MENON
I would like to thank u for the valuable information provided to me , i will
try to contact the addr. given by you.
thanking you again
Rajesh
Dear Mr.Popatlal,
If you are still in India and if you have few days time to spare before you
need to leave India it is davisable to go for a course of treatment in any of
the Ayurvedic hospitals in Kerala where there is effective system f or
management of arthritis.Even though Ayurvedic treatments are available in most
of the Indian States there are a number of well known hospitals here which
specialise in this particular ailment. These hospitals are run mostly by
traditional houses who have centuries old experince besides they have updated
the system to meet the needs of the modern day.
My wife has been suffering from arthritis and we had taken treatment in the
Kottakkal Aryvaidyasala, Malappuram district Kerala and we have benefitted very
much.
The medicines are non toxic and can be taken for a long period.
You may visit the site www.aryvaidyasala.com
Phone no 04832742216--19
Please note that we are not connected with this institution and we have no
business interest in providing this information.
Regards,
P.K.Menon
John,
You wrote to KElly about RA typically caused by post-uti infection.
Do you have any more info on that? I ask because when I was pregnant
with my twins I had one that wasn't easily cured due to antibiotics
and being pregnant. I must say that it took several rounds of
different antibiotics to get rid of it. About 1 year later during a
stressful time after the death of a dearly loved grandmother and sleep-
deprivation from the twins, I developed RA symptoms. Coincidence?
I'd love to hear what you know...
Michelle
I was finally diagnosed with "classic" RA at 27--I had had symptoms on and
off since I was 17. Some people are very difficult to diagnose.
Linda
I have been on Arava and it has turned up useless at best. My Rummy
wants me to try emberl. Dr Mercola informed me that since my remission
has stopped in 2000 the protocol willnot take hold again so I had to go
to trex,plaquinel and been on Arava for 5 years and it has now quit.
Does anyone know what anti-inflam meds I could add to Arava. My Dr
says there are none other than big stuff. And I informed her NO thanks.
Geoff, are you still out there. You always had great info.
Thankyou anyone. Janet Montana
Cooky,
No, no, it's Stiefel, not Steifel. If you do a Google search on
Steifel, you won't find Minocin by Stiefel or a pharmacy that carries it.
"Stiefel" is easy to remember. It's German for "boot"or "boots." Just
think of walking all the way to Canada in your Stiefel to find
affordable brand name Minocin.
Sincerely, Harald
Hi my name is Kelly! I am a 27 year old female living in Illinois! I
have been sick for about 5 years. It started when I thought I had
the stomach flu! I could not eat without getting sick for 4 months.
Along with that I had high white blood counts, low grade fevers,
joint pain, wierd rashes, and a reoccurring infection in my foot.
Since I have gotten somewhat better. But I catch anything and
everything that comes my way! That tends to put me into a "flare
up". My flare ups consist of joint pain, low grade fevers, rashes,
fatigue. Doctors have been unable to put a diagnosis to it. I am
currently having a bad flare up. My ANA and RA test are negative but
my Sedmentation Rates are high! I sometimes still have high white
blood counts. I also am having swollen glands and blisters that come
and go in my mouth. My whole body is inflammed. I am on prednisone
and they just keep uping the dose if it is not working. I am also
taking Naproxen and Darvocet for pain. I am waiting to see my 6th
Rheumatologist that was recommended by my primary doctor. The
soonest appointment was July 23. My doctor keep mentioning putting
me on Methatrexate! I have read your messages about this drug and am
very concerned! Please respond to this message if you can relate or
has any information for me! I am scared and depressed. Thank you for
time! Kelly
OK, Im on methotrexate 12.5 mg once a week... DR said it was supposed to slow
donw my immune system.. but Im starting to not feel very well after i take it
(had a bad nite last nite) I still have alot of pain, if I dont take a pain
pill.. its been 14 weeks now. My hair is coming out.. so WHY AM I TAKING
THIS???? I see the DR next week and will ask again... I really miss my WINE and
summers here, sure would like to have some cold wine with friends... Kathy
Hi,
Hopefully someone can help me out with this question :) I've been
trying to follow a strict celiac diet - I'm not sure yet if I am - and
also follow Dr. Mercola's advice on diet for RA. Does anyone know if
rice is ok to eat? If not white, then brown? I've been off grains
for almost a week but I wanted to try bread that has rice flour in
it. Any suggestions. Also, is the yeast OK?
Thanks,
Michelle
this is Kathy here...I think I KNow who you are??? Are you "Marti" Rose who used
to have Collies?????? Kathy
IS STIEFEL good to try? Has anyone gone from Lederle to Stiefel?
www.rheumaticsupport.net is the correct site url for the Dr. Sentef
chat Thursday. Hope to see you there!
Jan
Discussion on the use of long term low dosage of antibiotics for the
treatment of auto-immune diseases such as Scleroderma, LupHi Kathy! Geoff
here.
You wrote:
"as for "sick" people, Ill tell you a story (names are changed to protect
the quilty)
In one of my "hobbies" theres a person who is out there on weekends, running
around, working hard, playing hard. Then she says she has a "service dog"
and is on disability!!! The rest of us are employed and making ends meet,
and here she is on disability, not working, but out "playing" and has this
service dog she takes everywhere with her.. (we all would love to be able to
take our dogs with us too) anyway, alot of people took a dislike to
her...why cant she work if she can play on weekends?"
There is no end of people who will lie, cheat and steal. These are basic
human tendencies that civilized societies "teach out" while in childhood.
The idea that all people are good is folly. People are taught to be good,
and some don't take to the teaching.
Your concentration needs to be on getting yourself well. Paying attention
to the thieves like your example will only add tension to your life
resulting in stress. Worrying about what other people think of you will do
the same.
Thieves and rumor mongers will always be amongst us.
Geoff
what is the best test to determine which organisms are involved?
thanks
monique
Has anyone had experience with Dr Susan Busse? I heard she is a AP doc.
Hi
I have been on Minocin for years. I was wondering if I should take a
chance with Canadian minocin. I am going broke and I see it is a lot
cheaper. Can anyone say they have tried both and is there a difference.
I do not want a flare. Also, who can I order from to make sure I get
the correct drug in Canada?
Rod
Hi every one ,
I Rajes leaving india ,i am suffering from rhumatoid arthritis since 7 years
, now my hands are crippled and i can t my normal work,please some one advise
me how can i improve my life as i am fedup to leave like this i got
depression and dont like to live also, i am taking voveran sr 75 medicine as a
pain quiller. my age is 45 now..
If someone can guide me how to overcome my problem it will a great great
help for me
thanks
my mob no 91 281 9879302816
my email popatlal_fr@... .
i speak english and french
---
Jon, the lab had to come up with a cut off, but I'm with you, She may
have a very small load of Borrelia, many people do , but she has been
exposed to the organism. I would prefere that a negative say .00.
Carol
I am confused....My wife had a Lyme test done and the result was
"negative", however, the result was .02.
A borderline positive is .03 and a .04 is positive. What I don't get
is how anything above zero can be considered negative. You either
have the antibodies or you don't...what am I missing?
You can't be a little pregnant....
hi ethel
do you know if the ethromycin 3x a week works as well as zithro 2x a
week? i know franco uses that with patients who have lupus antibs. in
their blood.
thanks
monique
OK, Im being treated for auto-immune arthritis (psoriatic?) but now I found out
I may have a more serious problem, Im going for an MRI pf my pituitary on June
12th. I think Im "on hold" till more tests are do