Health Info

Dear Group,
I just updated the Canadian Minocin pricing on my web page
<http://www.tmgp.com/minocin.htm
Sincerely, Harald

Thought those using supplements might be interested in this:
http://www.msnbc.msn.com/id/23281073/

ethel you are such a wealth of info. have you considered writing a book?
i am so glad we have you as a resource.
thanks!
monique

Minocin anymore (I had been getting the 50 mg Minocin brand). <<<
Hi Les,
I was recently told I couldn't get minocin 100mg brand by Triax, too. Richie,
a long time volunterr on the RBF BB, said that sometimes the larger chains go
through this with their computer systems. He was right. I went back, spoke to
the pharmacist, she called their distributor and was able to special order it
herself. Mind you, it was the 100mg cap, not the 50mg.
Triax brand minocin is still available, though, so if the one pharmacy you
usually use can't get it for you, you could always try another. If the 50mg caps
are no longer available, you could also do what many do - buy some empty
vegetarian gel caps from your health food store, split open the 100mg cap and
divide the contents in two to make 50mg caps yourself.
Otherwise, you can also buy Steifel brand minocin from Canada through the
online dug store buylowdrugs.com Works for many, too. Steifel is exactly the
same as Triax brand (just a different color cap), as it was sold to these two
companies from Wyeth. You just have to be sure to state "Steifel Brand Minocin
50
mg Capsules" on your order form.
Sorry I don't know much about the Global Farm generic....I was told that
Watson and Teva did fairly reliable generics, though. I'm pretty sure none of
the
generics will be the pelletized, slow release version of the Steifel or Triax
brand names, though.
Peace, Maz

Hi Glenda,
What happened with your root canals and what did they do when they removed
them? I just broke a tooth and the dentist wants to do a root canal. He says
he needs to do it to save the tooth. I have never had one before. What
alternatives are there to having one done? Any information would be
appreciated.
_____

I was recently told by my pharmacy that they could not get brand name Minocin
anymore (I had been getting the 50 mg Minocin brand). They currently have only
Global Pharmaceuticals brand minocycline, 50 mg.
Does anyone have any info on if this is as effective as the brand name Minocin?
Are the ingredients, including the inactive ingredients (to which I can have an
allergic reaction), the same as brand name Minocin? Thank you for any info you
can give me- Les

Chuck Norris jokes are no longer just collected on dozens of specialty
websites. Even search giant Google has gotten into the act. Type in the
search term "find Chuck Norris" on the Google search engine, but don't
hit the search button. Instead, try the "I'm feeling lucky button."
What comes up may surprise you.
I did it, it's cute.

Hello everyone,
Has anyone read up on the MMS (miracle mineral supp) story that was posted to
the group, or even tried it out ? I find it interesting.
Thanks...
~Leonie

Would someone be so kind as to send me a list of doctors in the St.
Louis area who will help/administer the AP? Thanks so much, and God
bless you all!
Diane

Does Dr. Franco still see patients? Does he take new ones?
Karen M.

Can anybody point me in the right direction for an AP doctor around
Westchester NY or Southern CT? Looking for low dose Minocin therapy.
It would be much appreciated.

My mail order pharmacy sent me Minocycline instead of Minocin. I
called and told them of their mistake, they looked at the
prescription and admitted the error was theirs, and are sending me
the Minocin, but it won't arrive until Monday. Since I take 200 mg a
day (except for two evenings when I take zithromax), If I get it
from CVS, my plan will charge me $50 even if I get the five pills
that I need until I get the Minocin on Monday. I called Whitman but
he was out of the country. Questiion: 1) Should I take only
Doxycycline at night (which I have), and experiment with pulsing, 2)
should I get my mail order place to tell CVS to give me Minocin for
less (if I can, or should I take the Minocycline until the Minocin
arrives. (My neck has been hurting again lately and I am worried,
but maybe I was taking too much Minocin.)
Please advise!
Linda

I was reading the hospital discharge records for one of Dr Browns
patients (Kyle) and I noticed that his discharge notes do not in
anyway have anything in common with the protocl that is said to Dr
Browns.
Apparently Dr Brown saw him about every six months for IV antibiotic
treatment. In addition to the Nsaids and opiates used I was checking
out the Antibiotics. Oh yeah, and once Dr Brown even used an
antihistimine/decongestant as a NSAID.
07/10/78
Minocin 100mg (appears to mean 50mg bid)
Amoxicillin 250mg every other night at bedtime
01/15/79
Sumycin 500mg and Ampicillian 2(probably 250mg) Both MWF at bedtime
07/05/79
No antibiotics mentioned on discharge
01/07/80
Minocin 50mg bid
07/08/80
No antibiotics mentioned on discharge
06/01/81
No discharge statement at all
06/29/82
Tetracycline 500 mg Tid MF
07/05/84
Tetracycline 500 mg Tid MF
I thought this was pretty interesting as it's nothing like the
protocols. Would love to see other records.

After reading thousands of statements.. and remembering that I'm only
a newbie.. I think that the typical process of starting people on
minocin is totally unnecessary. Too many people drop out because of
tolerance issues.
There are several medications that are less effective - which I read
easier to tolerate as they kill off less antigens.
Try starting with Tetracycline itself, it's listed as the least
effective, and it is the one Dr Brown used.
250 mg 2x day MWF
After 6 months try something a bit stronger, Erythromycin, 333 mg 2x
day MWF for another 6 months.
Then Doxycycline, 100mg 2x day MWF for another 6 months.
And only then move to the really strong one... minocin 100mg 2x day
MWF. By now the other antibiotics should have significantly reduced
the amount of antigens available and thus the minocin will be easier
to tolerate... I hope.
The 6 months is only an estimate and has to be evaluated based on the
tolerance. I'm allowing a minimum of 6 months, and up to a year
before rotating if there are still tolerance issues.
This is the procedure we have decided on for Mr Perfect, and so far
it's working great. (about 2 weeks now)
I thought that this would be most effective, and least harsh, as
we're starting with the least effective and most gentle and working
our way up to the strongest one with the broadest action.
Adding the MSM which reduces inflamation and does other stuff to
reduce pain and repair the joints might make it easier as well.
According to what I've read a minimum of 2000 mg a day and up to 6000
mg a day has been effective and safe. Mr Perfect takes 1500mg 2x a
day now that he's not taking pain pills any more.
Anyway, that's what we've decided on.
But remember that we're not talking from experience here, only
research, and we're just as new as you are.
I told a friend about the protocl and she was very interested as she
has a friend with RA, and I wrote up some stuff for her to get
started on. If you want a copy, you can write me off list.
See if it would help your people get started.

Dear Folks,
Well, it's been a week since I found you good people in a quest to find
better outcomes for my client. It feels like a year, so much has
happened. Can anyone clarify the best protocol to start on for my
client? There are so many versions available it seems and we really
need to get clear of where the best place to start is. What have a
supportive doctor, but would appreciate your thoughts on the matter.
Thanks Angela the Naturopath.

Dee,
I'm so sorry to hear about your sister. Please don't put too much stock into
the anti-ccp
test. I am negative also but have now read that the real indicator of disease
is the
presence of some HLA-DR2 genes. Sorry, I don't have time to search the internet
now but
there are several subtypes of some of these HLA-DR genes and rhumatology is
complicated. They used to think that sero-negative RA was molder but they've
changed
their mind on that too.
Please just try to think healing thoughts right now. You're in my thoughts.
Lisa

Has anyone read the article in the April 1, 2008 issue? I was wondering if
it referred to someone in this group. Her name is Cathy Koch.
It described a woman who had SD being treated experimentally with
minocycline. The doctor running the trial was Dr. David Trentham at Harvard
Medical
School. That was in Feb. of 2000. She recovered and is living a fairly normal
life today. Previously she had been told she might live three to five years.
I thought it was exciting to see this in a mainstream magazine. The more
people exposed to AP the better.
**************Ideas to please picky eaters. Watch video on AOL Living.
(http://living.aol.com/video/how-to-please-your-picky-eater/rachel-campos-duffy/
2050827?NCID=aolcmp00300000002598)

Hi everyone,
I use this link when i want to manage the settings on the groups i belong to.

HI Everyone:
Has anyone had any success with generic doxy on the antibiotic protocol? Dr.
Whitman has started me on the mion/doxy combination and my pharmacy gave me
generic doxy. I know that the generic minocin is usually not effective, but is
this the same for the generic doxy?
Thanks,
Roni

Hi Everyone,
Hope you're all feeling well. I had an appointment with my rheumy today. The
last time I went in for a visit it was blood work time. He did an anti-ccp
blood test along with the usual. He explained that this is a new test and
that's used to confirm the presence of RA. We knew I have RA so I'm not sure
exactly why he did the test. Anyway, he went on to say that the presence of
these antibodies is a predictor for what he calls a "worse course of the
disease". Guess who tests positive? And the RF factor is on the rise after
reaching remission level for years. Okay so know I'm worried. I have been
flaring and no matter what I'm trying it doesn't seem be reeling it in. I've
been in a flare since last June after my sister was murdered so I know the
stress of that triggered the beast. I'm up to 200mg of Minocin everyday and
the doctor warned me that I'd better start taking the Mobic everyday or I'm
asking for trouble. Nothing in my diet seems to be causing trouble. My
ankles were swollen all summer on and off and now my right wrist doesn't
look like it belongs on the same body as the left wrist does. Any ideas?
Regards,
Dee

I have experienced the dermatomyositis rash on my face before but
lately it's extreme. My eyes feel like they're going to melt. The
inflammation doesn't subside as it has in the past. I also have a
metallic taste in my mouth with a lot of pressure under my ear lope.
I don't have a doctor's appointment till March 17th. Does anyone have
suggestions for pain relief till then? I take minocycline 100mg M W F.
Thank you,
Rae

Steve is the owner of the list and Chris and I are the moderators.
Ethel

group for so long...they ignore me, it's impossible...does anyone know how to
get out of this group without having to change to another e-mail address???
Help! <<<
If you've tried and are unable to unsubscribe through the hyperlinked address
given at the end of a post, then you could try going to the actual group's
home website:

Are you saying that the anti biotic protocol is just another
delay, that it does not work?

Leonie has asked that I forward this email to the list.

Found this written on one of the MMS website ... and it quite gave me
the giggles.
They brag aboutn how chlorine is approved for water and thus is safe,
they warn not to take to much as it will kill harmful viruses in your
body and make you feel ill at first.
And yet the same people pushing MMS (chlorinated oxygen, and by
proxy, chlorinated water, are all tweaked out about chlorinated sugar.
I think I'll just wait and see about this one, and keep using my
splenda as long as we don't have any issues with it.
* * * * *
The comments from the article:
Anonymous said...
Dear anonymous,
Did you research the MMS free eBook - part I, and buy Part II?
This chlorine dioxide has been approved by the FDA for water
treatment and to kill pathogens when washing fish, chicken and beef
meat at the packing plants. You have to be careful and not take too
much at a time or you could get quite sick as the critters die really
fast in the body. I started with one drop and worked up to 7 drops -
4 times a day after a few weeks.
I'm not sure what you mean by the product being "uncontrolled" ? Who
are these people who are in charge of your life and control
everything for you? -- Who are these controlling people and just what
have they done for you?
Stabilized Oxygen is not new and has been on the market 80 years and
it is just now being used in a powerful new way.
Lets do some thinking and taking action for ourselves and quit
relying on some "other" person to control us.
What does anyone else think?

This list was formed back in the mid 90s to provide information about the
antibiotic protocol as well as providing support and encouragement to people
using it. It proved valuable to physicians interested in the protocol and they
joined from time to time providing their insight and learning from our
experiences. What a great combination. There are some on this list who will
remember the rheumatologist from New Zealand who was with us for a long time,
becoming a friend accompanying us on this journey back to health with his wise
counsel. We were a tight-knit group - like a family if you will - interested
in and considerate of one another. There was a physician that provided
medication pro-bono for a patient who could not get it on their own. And a
scleroderma patient in NC (?) that drove his RV to Alabama, picked up a critical
scleroderma patient and drove him for IV therapy all the way to Iowa. I wonder
how many are still on the list who attended the seminar in California Dr. Franco
put on for our group and his patients, or the one he spoke at in Dallas, TX for
people in the group. Both times there was a great time of learning and sharing.
One group member from Australia paid the airfare for another member from Canada,
in a wheelchair, to attend the California seminar, and after the seminar, Dr.
Franco examined and treated her at no cost. Members in the group contributed to
the cost of her supplements. I still remember the day she announced remission
and sent us the picture of her riding her horse again.
But when you operate lists like this, people come and people go, and the
"personality" of the list changes. People joined who cluttered up the list with
inconsequential posts that had nothing to do with the protocol and posts
directed only to one person - some emails with just one word in them. The
number of emails - already high, increased dramatically. These doctors,
rightfully, complained they didn't have time to wade through such posts and left
us. Frankly, I didn't either. But they weren't the only ones complaining.
People also complained who were so sick that operating a keyboard was very
difficult and tiring, and having to wade through all these non-applicable posts
to find one of substance was impossible.
That particular group of people didn't feel they could comply with the intent of
this group and left to form their own where they could chatter about anything
they wished to, but it didn't last long.
You are welcome and encouraged to discuss anything pertaining to the protocol,
or anything that might improve, enhance or even hinder it, or other therapies
you have found that might be of help. (Even Dr. Brown did not feel the AP was
the even the total answer.) Yes, even subjects like health insurance providing
you state your pro or con in an intelligent, articulate fashion without
attacking another's position. One thing that we cannot permit is personal
attacks on each other.
Regarding these unsubscribe requests, please be kind when telling the person how
to unsubscribe Some people are so sick they can't remember how they subscribed
in the first place. Yes, there are some who just want someone to do it for
them. There will always be that kind. Then there are times the person has a
problem unsubscribing they can't figure out. Such is the case with Janet and
Norman Moss.
Bottom line? While we always appreciate your help on this list, if you can't be
kind in your reply, please leave the job to the moderators.
Thank you!
Ethel

google jim humble and MMS. he started the use of it in africa to treat
malaria. now it's being used to treat lyme and even RA as well as other
things. not sure what to think of it. don't know enough.
monique

Dear Group,
When there is discord our ability to fulfill the purpose of this list -to
help people interested in AP - is greatly diminished. How inviting is it
for a new person looking for desperately needed advice to come to this list
to find participants going on about unrelated subjects and being
discourteous toward each other? We also risk losing our old time members.
They don't post so much because many have their lives back, but they hold a
wealth of experience that they share when needed. This is a valuable
resource we would be poorer to be without.
Take care,
Ute

Hi Everyone:
Sorry for one more question that has probably been asked before....
Dr. Whitman put me on mino and doxy for scleroderma. My drug company gave me
generic doxy. They are a pinkish/organge round pill.
Has anyone had sucess with the generic doxy brand?
Roni

Well here's an idea for getting busy and away from one's PC or dinner table:
"First, you're going to need a virgin.
And, you're gonna need some daggers.
Then, it must be a full moon. And midnight.
Did I mention you need to be in a forest/wooded area on the western
border of an unharvested wheat field?"

haha Amy - they must do ! . i would love to further ridicule those who can't
perform the simple task of un-subbing from a group (there seem to be a lot
lately), but i better shut up because alas, i have been known to be "non compos
mentis" at certain times, so do not have a leg to stand on.
Someone wrote into another list asking how to get off the list. One person
answered:
"First, you're going to need a virgin.
And, you're gonna need some daggers.
Then, it must be a full moon. And midnight.
Did I mention you need to be in a forest/wooded area on the western
border of an unharvested wheat field?"
Enough said...
Leonie

Okay....I agree....let's focus on our health issues. I had to voice my
opinion. I would like to thank everyone for all of the wonderful info.
Susan Mitchell

Thanks Jeff....I agree with you. I have to watch my blood pressure because of
some of the reply's. Okay...we all have our opinion, so I will give mine.
For years, I was a divorced mother of a son without child support. BTW, my ex
was an attorney....another story. Anyway, I struggled every month, lived
paycheck to paycheck and probably could have received financial aid, food
stamps, etc. I chose not to. I went from a very nice way of living to rental
property. Granted, at the time, I didn't have scleroderma. I am now on
medicare disability at age 55. Yes, I don't work, however, my husband pays a
heck of alot of taxes. My father, who owns a business, pays a huge amount of
taxes. Why should we expect the people who works so hard and makes a good
living support us? I love helping other people...and I do. I believe that we
should teach people to be as self sufficient as possible. I know there are
people who need help, and I am willing to help them.
I am so glad that Jeff could put into words the way I think.
Susan Mitchell

Physicians Committee for Responsible Medicine http://www.pcrm.org/is
an international organization of doctors who realize and advocate
the vegan diet. It is the most healthy diet.
The book "The China Study" scientifically details the benefits of
plant-based diet for numerous diseases.
There is also a doctor in California who builds his whole program
around a plant-based diet (I believe one in Hawaii too), and he's
seen great success with autoimmune diseases. They have retreats
revolving around the diet, and have chefs teach people how to cook
some amazingly delicious vegan food. They have groups that go on
adventure trips to a plant-based diet retreat in Central America.
Vegans- doing the most good, for themselves, for animals, for the
planet.

I just watched a program on Discovery Health where a group of people ate
only raw fruits and vegetables for 12 days. They all had high cholesterol; and
as a group, they reduced cholesterol by 23% I believe was the statement. One
gentleman with high blood sugar, at risk for diabetes, brought his blood
sugar down greatly, although I don't remember the figures.
I have eaten meat all my life, but I am beginning to realize that flesh and
milk products are not good for us. I am going to work very hard to cut back.
I think we have been sold out by advertising.
Karen
**************Ideas to please picky eaters. Watch video on AOL Living.
(http://living.aol.com/video/how-to-please-your-picky-eater/rachel-campos-duffy/
2050827?NCID=aolcmp00300000002598)

Imelda,
Wow. What challenges you have faced. I got two hips at 45 and my RA is
everywhere. I
will need neck fusion also and some knees too. Probably elbows also. How do
you
manage each day? Can you walk without assistance?
Lisa

Yesterday my computer sent out an improper email - it a worm, went right
through my address book.
Please believe me that I had nothing to do with this - I have received a
number of reply all along the same line about having a sick, or twisted
mind; I totally 100 % agree.
I am sick - I have had severe sero-positive rheumatoid arthritis since
15 with multiple joint replacements (8x hips YES EIGHT, five on the
right and three on the left, both knee's replaced and C1-C2 fusion with
halo traction for 13 weeks ... and so on)
I also have a rare leukaemia that comes with long term chronic severe
sero+ RA called LGL - large granular lymphocytic leukaemia, thankfully
at present it is only being treated as a W&W (wait and watch) and not a
chemotherapy regime or worse.
Please do not judge me by this photo - I am even more upset than you
have been about it.
Regards: Imelda

I didn't know anything about RA, but I did know how dangerous it was
to be taking the amount of pain medication that Mr Perfect was taking
every single day. It scared me to think that the future could only
mean more and more and more.
So, first off, eliminating all sources of stress, because I knew
that stress hormones do nasty things to the body.
Then eliminating sugar, black teas, tomatoes and all
other members of the bella donna family, all of which
cause inflamation.
The sugar subsitute we chose was Splenda.
I cut all of his pain pills in 1/2.
New rule was "NO PAIN" ... at the slightest
hint of pain he was to take only 1/2, and he
couldn't take another 1/2 for an hour. No more
letting it get worse and worse and worse untill
he had to take 2 or 3 pills at a time to make it
go away. If he was doing something that "might"
cause pain, he was to take 1/2 a pill immediately
before the pain started.
This sounds weird I know, but by stopping the pain before
it started he acutally did need less.
I had added MSM, (methylsulfonylmethane) solely for it's
ability to assist the pain medication to enter the cell
walls ... thinking less medicine doing more work.
So it was 1/2 a pain pill per each 1000 MSM pill.
It was later that I learned that MSM also reduces inflamation
and is involved in healing joints and reducing joint pain
on it's own.
http://www.msmguide.com/
Then I taught him meditation, trance work and ritual. (good
endomorphins do good things for the body)
Ours is a new relationship, only 8 months old, so there
was lots of cuddling and good feeling and loven to create
more good endomorphins.
Then we had to deal with the damage to his eyes, the huge amounts of
thick scar looking tissue on his arm,(from elbow to shoulder,
including both joints) the ulcers on his ankle, and
the many other nasty side effects of this disease.
I arranged for a real massage every month, and I gently rub in
Eucerine moisturinzing cream every evening. Added some long
impossible to remember named herbs and stuff for his leg (veinious
insufficency?)(pills, not to the cream) If you want to know what they
are, I can tell you on Tuesday (we travel on weekends and have the
travel bottles only with us.)
It was by checking to ensure that there was no side effects from this
stuff with his medications ... that I learned how devestating his
medications are.
That lead to figuring out what else was out there that might
at least reduce the amount of DMARDs he is on each week.
So, here we are, he only takes maybe 1 or 2 pain pills a week now,
sometimes none at all.
His eyes are totally healed, his leg is almost normal, the swelling in
his joints is barely noticable, though you can tell that it's there,
and the skin on his arm is also almost normal.
He's had a nasty flu for the last month or more, and hasn't taken any
of his DMARD's so that his immune system can deal with the flu, and
he hasn't had any relapse in any of the symptoms. (antihistimines are
also NSAID's, so that might have something to do with it.)
And he's finished his first week of Tetracycline on the pulse dosing
of 250mg 2x day MWF ... and we're waiting with bated breath for some
kind of noticable change.
He was tested at the beginning of the month, after 2 or 3 weeks with
no DMARD's, and we're hoping that the results are as good as his
November tests so that he can drop at least one of the DMARDs, at
least for now. The next scheduled tests are for the end of March, and
the doctor hasn't yet agreed to the AP Protocol tests, and as long as
she's working with the program we can wait.
You'll find your own Perfect person one day, as long as you
never give up the dream.
Blessings

Hi fellow members,
Can anyone correspond with Angela the naturopath about Lyme disease in regards
to her patient who is seeking the AP (see below excerpt) ? I am clueless on the
subject but i know if an AP doc is worth his salt, he will test for Lyme when
appraising a patient's history, as Lyme can closely resemble other auto-immune
diseases ?? (i think) <rolling eyes
"I am thinking that I may send my client to Sydney to an Infectious Disease
specialist (Dr Bernard Hudson at Royal North Shore) as her whole
scenario began with a series of bites, both tick and spider. My
understanding was that lyme disease was not a possibility in
Australia. It seems that thinking has changed on this. He also does
antibiotic therapy"
Best,
~Leonie

New South Wales
Hi Angela,
I'm not sure if you've got this list, but I'll send it anyway...
My doctor, Con Mouroukas in Gordon, isn't on this list yet.
Leonie
Dr. Kalel Kromek
Argyle St.
MULLUMBIMLEY
N.S.W.
02 668 44789
New South Wales
Dr David Richardson
2 Royston Pde
Asquith
N. Sydney 2077
Australia
http://www.roystonclinic.com
ph: 02 94766307
fax:02 94773591
Member MP.com Sept06
Nyrie Dodd
6 Alice St
Newtown
NSW
PH:02 95506500
prescribing MP Mar 07
Dr Lily Vanker GP
Bondi Junction NSW
Ph: 02 9386 5224
and
Milton NSW
Ph: 02 4455 7095
Member MP.com Aug 07
Dr. Foo 4-15-02
30 Fenwick Street
Wyoming
NSW 2250
Australia
Email: deshipman@...
Rod Allen
Lorn Surgery,
Belmore Rd,
Lorn, NSW, 2320.
(049) 332 622
Dr. Ian Cram
Coramba Medical Centre,
Gale St, Coramba, NSW, 2450
Ph: (02) 66528477. fax (0266) 544277
Member says he is not currently taking new patients.
Chris Reide
Sydney, NSW
(uses diet, many SD and lupus patients)
Dr. Louis Whitton
68 John Street
Camden, NSW 2570
P: 011 612 4655 5400
Dr. Iain Stewart
23 Mitchell Drive - Suite 5
P.O. Box 2058
Greenhills, NSW 2323
P: 011 612-4934-7247
D: 011 612 4934 7300
takes referrals - attended RBF dr. conf
Dr Marilyn Golden
Suite 9, 398 Victoria Avenue
Chatswood NSW
Tel: 02 9411-1533
Dr Mark Donohoe
YourHealth Manly
15 South Steyne
Manly NSW 2095
Tel: 02 9977-7888
Please contact YourHealth Manly for appointments, reports or other information.
Web site: homepage.mac.com/doctormark/Personal14.html

Hi Leonie,
Thanks for the list. I am in Northern NSW, around 1 hour south of
the Qld border. Someone else commented that Dr Kromek in Mullumbimby,
who would be my closest, doesn't know anything about the protocol and
is unsure of how he came to be on the list. Someone needs to correct
this as he might be getting a little annoyed with enquiries. I am
thinking that I may send my client to Sydney to an Infectious Disease
specialist (Dr Bernard Hudson at Royal North Shore) as her whole
scenario began with a series of bites, both tick and spider. My
understanding was that lyme disease was not a possibility in
Australia. It seems that thinking has changed on this. He also does
antibiotic therapy.
Thanks once again, I really appreciate your response.
Angela.

Ethel, do oil of oregano and olive leaf extract support or enhance the AP?
Thanks,
Linda

protocol for this presentation? Also are there any doctors or support
groups who we can speak to here in Australia?<<<
Hi Angela,
The Road Back Foundation at roadback.org would be a great place to start.
Australia needs more antibiotic protocol docs on their physician referral list
and would also love to hear from you and put you in contact with other
practising physicians. You'll find a lot of great information on this website
and a
physician's packet to print out. There are also volunteers who may be contacted
in various locations who can advise on patient support.
Peace, Maz

Hi Leonie
Wow, that was a snappy reply! Thanks a lot. I am pracitising in
Northern NSW in Alstonville (near Lismore). You can visit my website
at www.womensnatmed.com.au for more information. In the meantime I
will await further leads on something closer to here for my client.
Thank you so much for replying,
Kindest regards,
Angela.

Hi Angela,
I live in Australia too, as you might have gathered. I go to Dr Con Mouroukas
in Gordon, Sydney. He's a holistic doctor and does the AP in conjunction with
another doctor who is an expert with it (but doesn't take any new patients). I
don't know of any support groups right now.
Where are you based ? I'd be interested in seeking your help with my RA and gut
problems as well.
Best wishes,
Leonie

Hello everyone. It has been a while since I have posted regarding my
DM but I am doing pretty good for now. Today I ask about MS. Has
anyone out there dealt with this disease and gotten help with AP
Therapy? I know of a gentleman in my hometown that has worsen through
the years with MS and the other day as I was coming out of my
Chiropractors office he was trying with all his might to get out of his
vehicle, to the sidewalk and to the doctors front door. He was
struggling so much that when I noticed I drove back, got out to help
him. He didn't want help and he forgot my name but I instisted because
I was fearful he would fall. He was that bad. Anyway, we made small
talk and I told him that I had a battle with DM in the past but was
doing much better. He told me he was trying some treatment but his
wife wants him to give up!! Can you believe that?? I told him, if your
heart tells you not to then don't. He said, no I don't. I will keep
fighting. He looked at me and with a smile, said, "We have to stick
together and beat this". I said, yes Steve we do. He is only in his
early 40's.
So tonight, I was wondering if anyone has any suggestions to help him,
meds, vitamins, diet, etc. I am going to try to find my Henry S. book
to give him but I have misplaced it.
Tomorrow, I plan on talking to my chiropractor and asking him why he
doesn't have handicapp parking in front of his building to help people
who can't get around as well. I have been there, I know!!
Thanks for your help. Hope everyone is well!!
Teresa in Texas
DM 10 Years

This is probably not the right forum for this, but I do wonder if some of
our ills come from the way people process our food supply. There was a recent
uproar over the mistreatment of cattle in a California slaughterhouse. Why
they made the recall in that case and not in others is a mystery to me.
If you want to see the awfulness..go to
http://www.goveg.com/factoryFarming.asp
**************Ideas to please picky eaters. Watch video on AOL Living.
(http://living.aol.com/video/how-to-please-your-picky-eater/rachel-campos-duffy/
2050827?NCID=aolcmp00300000002598)

My error, glad you picked up on it. I meant to type Medicaid is paid by
taxes.
He does most definitely for some of us because of the basis of our
philosophy, our morals. Enough said.
You are correct. There are many people who are working for 'the duty to
die' so we do not use up resources. It is a pity so many think nothing will
happen to them or they can't be bothered to become educated.
Denise

This is probably not the right forum for this, but I do wonder if some of
our ills come from the way people process our food supply. There was a recent
uproar over the mistreatment of cattle in a California slaughterhouse. Why
they made the recall in that case and not in others is a mystery to me.
If you want to see the awfulness..go to http://www.goveg.com/factoryFarming.
**************Ideas to please picky eaters. Watch video on AOL Living.
(http://living.aol.com/video/how-to-please-your-picky-eater/rachel-campos-duffy/
2050827?NCID=aolcmp00300000002598)

Hope this helps.
Denise
http://www.catholicnewsagency.com/new.php?n=6774
http://www.cjd.org/paper/encyc.html
From Edward Dowling, editor and priest, Chicago Daily News, July 28, 1941:
The two greatest obstacles to democracy in the United States are, first,
the widespread delusion among the poor that we have a democracy, and second,
the chronic terror among the rich, lest we get it.

hi i live in canada and woudl not trade my health care system for the US one. we
pay about $50 a month for healthcare and we may have to wait sometimes 3 mos to
see a speicialist but if it's urgent my doc gets me in within 2 weeks. of course
if it's an emergency i can go to ER and get treated immediately. i have a very
kind caring family doc who i can get into within a few days. she is also very
open to trying alternative treatments on me like ap.
monique
Posted by: "Linda Beckman"
Wed Feb 20, 2008 7:58 pm (PST)
Having watched this video and read the comments that followed, I
wondered if anyone on this list lives in Australia, Canada, the UK,
NZ or any of the other 87 advanced countries that have some version
of national health care. How do you feel about your health care
system? It would be especially interesting to hear from the list
because we are people we have a rheumatic disease. I have friends in
France, the UK, Canada, who do like their systems. Linda

I also found this .for Vicki
I found this little tidbit in my files that those of you with dry mouth may
want to try.
To stimulate saliva glands, try jaborandi, a plant grown in South America
(Brazil/Paraguay) and used by the Indians for this problem.
http://www.rain- <http://www.rain-tree.com/jaborand.htm
tree.com/jaborand.htm
Ethel
[

Hi Geoff,
Actually, this isn't entirely true. As a dual national, I've lived in both UK
and Canada and having a nationalized health care system doesn't preclude the
right to also take out private health insurance, if one wishes. In UK, BUPA,
for instance, is one such option.
http://www.bupa.co.uk/
I've lived in UK, Canada and the US. If I were to compare systems, I'd have
to say I prefer nationalised health care in spite of its warts. Although taxes
are higher (people adjust and are accustomed to different living standards -
gas prices are also twice as expensive in the UK, too, but people still own
cars - they are just compact cars), the hospitals aren't as shiny, equipment may
be thin on the ground and there are wait-lists for elective surgery...however,
no one is left without skilled, adequate healthcare or has to worry about how
to afford their medications - no one is refused emergency treatment. The
stories one hears here in the US of people who can't afford treatment or are
refused treatment by their carriers when they are seriously ill is just
unfathomable.
Dolores - when you had your UTI, you should have flown to the UK! As a
visitor, you'd be treated immediately at no cost to you.
Peace, Maz

Just a few thoughts on these posts:
Re Lupus and minocin, I have known several Lupus patients, that were on this
board, not sure if they still are, I never see them post but know that they did
very well on minocin for their Lupus...I believe one did see DR T in Boston.
(her name was Socjog)
Re IVIG...I saw a DR. Avraham Khadar, in NYC re my disease and to discuss if
IVIG would help with my disease process...(SD and RA) and he said my numbers
(referring to my lab work) did not indicate that IVIG would help me and further,
that it would be a huge, massive battle with my insurance company as the numbers
did not support IVIG treatment. Having said that, I do know of one woman, on
this BB that has received IVIG for years...and seems to be doing well. She also
has seen DR. Khadar.
I believe he has in office in NYC and we saw him in the Mt. Kisco office...I
believe...
Hope this helps.
Debbie

hi i have gone thru 3 differnt juicers and the easiest way i have
found to make green juice is using my vitamix. i put in 2 c water 1
head celery 2 green apples 1 lemon half a bunch of parsley and blend.
then i strain it using nut mylk bag. is so much easier on ahnds and
faster too. whole process including cleanup is about 20 mins. you
ahve to blend a few celery sticks in water 1st and then add restof
stuff so it will blend.
monique

Hi Gang! Geoff here.
We in the States are once again involved in our endless debate about
nationalized health care. Nationalized health care is when you make everyone in
the nation pay for your personal health care by taking the money they earn
through taxes. In order for nationalized health care, also know as single-payer
health care, to work, it is necessary to outlaw private health care, meaning you
give up your freedom to step outside the national system. This is a video of
how the Canadian system actually works for their citizens. If you're a fan of
this idea, or just curious, it's worth the 5-min it takes to watch it.
http://www.freemarketcure.com/brainsurgery.php

Hey y'all,
I see Dr. Trentham and he told me I had to take Celebrex twice a day for the
Minocin to
work.
Lisa

could you explain what IVIG treatments are please?
Thanks,
Talia

You just need to create a free anonymous personal ad. Then you will be
able to search people who have STD from all over the world.
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Hi Everybody -
I visited Dr. Mirkin today, after months of waiting for my first appointment,
and he told me that, if indeed I have SLE, the AP therapy will NOT work and I
must stick with the Plaquenil (or similar drug)/Prednisone combo - which I
really don't like at all and have reacted negatively to. He is also testing for
Lyme and he is hoping that is what I have instead of SLE because then he can
treat it with AP therapy.
I am SO discouraged. I was so encouraged to be starting AP therapy. Two top
rheumatologists have told me I have SLE and I just had a horrible flare in the
fall (my first since Summer '06 diagnosis). Still on 10 mg Prednisone,
though I went off the Plaquenil because I couldn't stand it. No pain now and
getting the Prednisone down 1 mg a week, but need long-term help.
Is there any encouragement out there?
Jan

Can someone recommend a doctor who is practicing the AP protocol in DC,
VA or MD area.
Someone mentioned Dr. Nathan and Dr. Mirkin in Maryland. Could you
give me name, address and phone number?
Thank you
Doris Tino
doristino@...

Does anyone who is experiencing dry eyes have a solution? Natural Tears
don't seem to help. Also has anyone had a vitreous detachment?
Please respond privately.
Thanks,
Linda

Hi all
I just found this article on the effects of tetracyclines on bone density.
Interesting:
"Treatment with minocycline reduced bone resorption modestly and stimulated bone
formation substantially. In contrast, treatment with estrogen drastically
reduced
parameters associated with both bone resorption and formation. We have concluded
that
oral minocycline can effectively prevent the decrease in BMD [bone mineral
density] and
trabecular bone through its dual effects on bone resorption and formation."
http://adr.iadrjournals.org/cgi/content/abstract/12/2/71
I also found articles about the positive effects of minocyclin and doxycycline
on some
forms of cancer.
A friend told me about Google Scholar and I often research things on this though
some
professional articles are not available to the ordinary person who hasn't paid
subscription
fees. If you're interested it's here:
http://scholar.google.com/
Ros

Hi Judy
Here is the web address of the article. It's at the top of page 3. It seems that
strontium
reduces the effectiveness of tetracyclines so at least it's not dangerous.
However, I want the
minocycline to be effective for the RA. Another decision!
http://www.servier.co.uk/pdfs/protelos_SPC.pdf
Ros

Hi everyone
I too am interested in the strontium because I too have osteoporosis, but I'm a
bit
concerned because I looked up the article that wiccantwinpaths quoted and it did
indeed
say that if you are using any of the tetracyclines (which is Minocin) you should
not use
strontium:
"You should stop taking PROTELOS (strontium) if you have to take oral
tetracyclines or quinolones (two types of antibiotics). You can take
PROTELOS again when you have finished taking these antibiotics. If
you are unsure about this ask your doctor or pharmacist".
It doesn't say what the effects of the interaction of drugs might be but it
could be liver or
kidney problems.
If anyone knows anymore about this I'd be grateful.
Ros

Currently I am treating my fibrosis with inhaling glutathione which is
an anti oxidant, taking curcumin and termeric, exercise. Any other
suggestions? I do not want to take steroids, prednizone etc.

And your PhD in chemistry makes you a better judge of when a person
should discuss something with their doctor???
My experience with doctors is that as an educated consumer it is
totally possible to bring up something that they are not familiar
with, but that only gives them nudge to learn about it.
I always discuss things with my doctor, and I would never trust
anyone who tells me not to bother because they know more than any
silly brain washed doctor.
The leaflet on the European approved osteoporosis medication says
this:
You should stop taking PROTELOS if you have to take oral
tetracyclines or quinolones (two types of antibiotics). You can take
PROTELOS again when you have finished taking these antibiotics. If
you are unsure about this ask your doctor or pharmacist.
The non approved supplements say they haven't been evaluated and
aren't medicine.
The studys clearly show that the best benefit is only in the 1st
year, and that it goes down in benefit after that ... being only
minimal beneficial after 5 years.
I strongly suggest that anyone who wants to take a supplement like
this, with such a clear short life and clear warnings NOT to use it
at the same time as tetracyclines should discuss it with their
doctor. And while they may not know anything about it at the
beginning, they will most likely either learn or refer you to someone
who can.

Hi -
I read the posts about Strontium for bone health and went to the health food
store to get some. All they had was "New Chapter Bone Strength" - a
whole-food Cal/Mag, Vit D3 and K2 Complex - with 5 mg of Strontium in a day's
dose.
Is this enough Strontium for the great bone protection I read about on the
posts?
I have SLE (diagnosed Summer '06) and presently take 12.5 mg of Prednisone.
I have my first AP appointment this coming week.
Txs for ALL the encouragement on this site!
Jan

help, i started taking 100mg of minocin 2x a day for ra and I got really dizzy.
does anyone
know how much i should start on to avoid the dizzies and when or if i should
increase my
dosage?

Hi all-
I'm going to the doctor tomorrow to (hopefully) receive a prescription
to re-start AP. I just finished re-reading *The New Arthritis
Breakthrough* as well as the FAQs at the rheumatic.org website.
I want to be tested for Lyme, especially since my journey through RA
began with a plaque-like rash. Rheumatic.org's FAQs suggested
centralfloridaresearch.com for lyme testing. When I went to that
website I found four different tests for Borrelia burgdorfei (the bug
that causes lyme). Each test is explained, though NOT in layman's
terms.
Can anyone recommend which of the 4 I should choose? Or a website
that might inform me about the four choices?
Thanks,
Angela

please remove me from your list pepper1960@...

Hi everyone,
I keep bumping into people lately with RA who take methotrexate and tell me how
great it is <pfffffft
like the plague, they look at me blankly as if i'm wierd < i am wierd actually
:)
don't feel doctors are on my side. Doctors can do some amazing things when it
comes to fixing up broken bodies, but when it comes to things like auto-immune
disease, i reckon they are stumped.
Can anyone tell me why they rejected the drugs like metho and other similar
ones, and opted for alternatives like the AP ? Was it because of the side
effects of the drugs ? I realise some people on this list still take metho, and
i'm not judging them. I suppose some people can tolerate strong drugs quite
well, and others can't. I never felt right taking metho... i was always itching
to get off it. I took it on and off for a year or two, and after a while it
stopped working for me - maybe i should have stayed on it continuously. The doc
wanted to up the dose to something which seemed very high. I said "no way". I
never quite understood how killing my immune system was a way to make me better.
Even if it did work, it didn't seem right.
Well, i guess the AP is still a drug treatment, which scares me just as much as
taking metho. It's taken me a long while to come to the conclusion that i
should try it. I guess one comes to a point in life where you either do
something, or you die, because doing nothing is like a living death anyway.
My doc didn't find any mycoplasma antibodies in my regular blood tests, but he's
also got me doing a different test tomorrow which is performed by a special lab.
It's called a DNA panel for mycoplasma and chlamydia. I guess it's more
accurate than the other test. If they don't find mycoplasmas, i wonder if i
still can do the AP......
best,
Leonie
~Leonie
leoniecent@...
Independent XanGo Distributor
02 62556202

**************The year's hottest artists on the red carpet at the Grammy
Awards. Go to AOL Music.
(http://music.aol.com/grammys?NCID=aolcmp00300000002565)

Hi Everyone! My name is Kim, and I've been a member of the group for
about 6 months now. I have learned so much from all of you - what a
great group of people with so much information!
Well, I was diagnosed with early RA in October 2007 and was taking
Minocin and Relafen. I was really starting to see some improvement
when I became pregnant with my 3rd child in late November. I stopped
taking both of the meds, and the RA virtually disappeared with only
swelling (but no pain) in my left knee. When I was diagnosed, I had
pain and swelling in my hands/fingers, wrists, left knee, and both
feet/toes, ankles and neck.
Now, I'm just about 16 weeks, and the swelling and pain is returning
to my feet, and a little in my wrists. It is certainly not
debilitating at all, but I'm concerned that if I don't get it under
control during my pregnancy, that after the baby is born I could have
some severe problems. Also, the amount of stress will be high the
next few months, as we are selling our house, and moving clear across
country just 6 weeks before I'm due to deliver! I am considering
going back on AP with Zythromax. Does anyone have experience with AP
during pregnancy? What antibiotics did you use and at what dosage?
Thanks so much for you help!
Kim

Dr Whitman is with Summit Medical Group in Berkeley Heights (sp) NJ...close
to Newark and Watchung...I have seen him for 8 yrs...love him...he started
me on mino and on oral clindamyacin...he feels that it penetrates tissue
just as well as IV and is easier to prescribe. I find him to be brilliant
and he worked with Dr. Thomas Brown who developed the AP protocol...he knows
what he is doing..
I am doing ok...no matter what I come up with...he finds something to help
me. I just finished the book one of his SD patients wrote...A Place To Go,
Maureen Taylor...she mentions him frequently in the book...She feels about
him the way I do. He treats his patients as partners in their battle...I
like it...He has saved my life. I still battle, but with DR Whitmans help, I
always know he pulls something out of his bag to help me! (I have
Scleroderma (SD) and tested positive for RA...I do NOT have Mixed Connective
Tissue Disease..or MCTD...I have Scleroderma and RA...both tests are
positive...but in order to be diagnosed with MCTD, one would need to be
tested for the RNP antibody...which I have...and mine is negative.
Therefore, I have SD and RA...Only if the RNP antibody tests positive...then
at that point, I would be said to have MCTD...That antibody is necessary for
the diagnosis of MCTD. Hope this helps.
Debbie
Good luck.

Debbie Gibson,
I wrote to you privately and asked for Dr. Whitman's e-mail since he
is my doctor too, though recently. Perhaps you didn't get that
message. It would really help to ask him some questions, and I am
not doing so well.
Linda

I recognize a lot of these antibiotics from the various protocols.
Has anyone tried them?
If the particular generic doesn't work because it's 20% less, then
why not just up the dosage to compensate for that?
Thanks
AMOXICILLIN 125MG/5ML SUS 80ML 100
AMOXICILLIN 125MG/5ML SUS 100ML 150
AMOXICILLIN 125MG/5ML SUS 150ML 80
AMOXICILLIN 200MG/5ML SUS 50ML 100
AMOXICILLIN 200MG/5ML SUS 75ML* 50
AMOXICILLIN 200MG/5ML SUS 100ML* 75
AMOXICILLIN 250MG/5ML SUS 80ML 100
AMOXICILLIN 250MG/5ML SUS 100ML 150
AMOXICILLIN 250MG/5ML SUS 150ML 80
AMOXICILLIN 400MG/5ML SUS 50ML 100
AMOXICILLIN 400MG/5ML SUS 75ML* 50
AMOXICILLIN 400MG/5ML SUS 100ML* 75
AMOXICILLIN 250MG CAPSULE 30
AMOXICILLIN 500MG CAPSULE 30
CEPHALEXIN 250MG CAPSULE 28
CEPHALEXIN 500MG CAPSULE 30
CIPROFLOXACN 250MG TABLET 14
CIPROFLOXACN 500MG TABLET 20
DOXYCYCLINE HYC 50MG CAPSULE 30
DOXYCYCLINE HYC 100MG TABLET 20
ERYTHROCIN 250MG TABLET 40*
ERYTHROMYCIN 250MG EC CAPSULE 28*
METRONIDAZOLE 250MG TABLET 28
METRONIDAZOLE 500MG TABLET 14
PENICILLIN VK 125/5ML SOLUTION 200ML
PENICILLIN VK 250/5ML SOLUTION 100ML
PENICILLIN VK 250MG TABLET 28
SMZ/TMP 200MG/40MG/5ML SUSPENSION 120 ML
SMZ/TMP 400MG/80MG TABLET 28
SMZ/TMP DS 800/160 TABLET 20
TETRACYCLINE 250MG CAPSULE 60
TETRACYCLINE 500MG CAPSULE 60

Harold's list is less than useful. Certain people love a certain
generic, others hate the same one and say it's useless, the only one
that didn't have a detractor turns out to be made by the same company
as 2 other generic brands that did have detractors. I expanded his
list to the Internet and found not a single one of the generics
listed on his list, doesn't have it's follows and it's haters.
All of the worked for some people, and not for others.
So if these two say the generic works fine, and those two say the
generic is a fraud... sounds like personal chemistry to me. Or
perhaps the two that made it work did something slightly different
than the two who didn't.
Either way it shows that the generics can be made to work just fine
and produce the same excellent results, if one figures out the right
way of working with that generic.
For those who didn't have success, did you try anything at all.
1. Increasing the dose
2. breaking or powdering the pill
3. I don't know, whatever else can be done.
Were you strict about no sugar or milk products, did you avoid
calcium, iron, magnesium...etc..
For those who did have success with generics, what do you think might
have been different about the way your protocol was carried out?
Thanks
(for $4 it's kind of worth trying assorted ways to circumvent the
difficulty, and become one of those for whom the generic works.)
Also, I read an article that says that there are 3 major distributors
of medication. These distributors recently had a lot of counterfeit
drugs seized from their warehouses... but not before significant
amounts were shipped to CVS and another store ... AS BRAND DRUGS.. so
insisting on a Brand name isn't always all that safe either ... sigh

Hi Sorry you had such a short visit. This doc in Boston at Harvard. What was
his name? it would save a lot of people long trips, if we knew. I've been on
a trip for 8 days and just got back to the computer. Had 250+ e:mails to read.
Just getting to yours. Thanks Dolores
savannahhipchick <lfriedman5@...
I went to a rheumatologist at Harvard. He is known to have worked with mino for
years.
His offer was mtx and I was the one who suggested mino. He said okay but it
would take
longer. Anyway he only spent 5 minutes with me. He was in/out and "see you in
four
months!"
I live in Savannah, Ga. Is there any doc you might know of who can help me?
Lisa

I see Dr. Mercola referred to fairly often in the postings and on the site.
Have any of you been to his clinic and received treatment there? I would love
to hear if you have.
Txs to you all for the encouragement you have given me, even before I have my
first appointment next week (with Dr. Nathan and Dr. Mirkin in Maryland).
Jan

Thank you for all the doctor addresses. Dr.Rima Jensen has remarried
her name is Kittley and she does take insurance. I see her and she
took UHC.
Eva

The brand Minocin appears to be around 1.40 to 2 dollars per pill at
100 mg.
Also, I found out that this product was divested to Triax
Pharmaceuticals, LLC as of Feb. 7, 2006.
Has anyone noticed any difference?
Lots of the articles and studies said that Lederle also made a
generic as well as the brand name. Do they still make it, and if so,
is there a specific way to have the doctor write the script to ensure
that I get only the Lederle generic, or the brand, that no other
generic will do?
Thanks

Amy,
For Minocin the brand works better for most people, though some people have
done okay on generics. I get my brand Minocin from Canada because it is
cheaper there. It seems to have gotten prohibitive in the US.
Take care,
Ute

I just scheduled an appt to see Dr. Franco in Riverside, CA. I am travelling a
long way (I'm in Alabama), but I think he is a very reputable doctor. Does
anyone have any suggestions or input on this?
I'm excited to finally be starting AP!
Thanks,
Beth

Hi,
This is my third attempt to get our e-mail deleted from your list. Please help.
Thank you.

Hi all,
I just had surgery. two weeks ago I was using a box cutter an I cut my thumb
an went thru a tendon also. So I just had it repaired. So if my writing is
bad for a while.its hard to type with just one hand.
cooky
h

Does anyone know if aldolase can also be treated with antibiotic. Mine is in the
450 range and it should be below 230.
Thank you,
Eva

Tomika Lewis [luvlucytel@...]
Hi everyone,
This is the name and email address of a young person that has been writing
to me and she needs some help that I can't give her. I think her final
diagnosis may be Psoratic arthritis. If there is anyone in hearing of this
post range that has PA please send her a note and talk to her about what to
expect.
She also may eventually do the best on zithromax. If anyone takes Zithro
please send her a note as she is comfused on which info to present to her
doc.
She is a young mother of 2 and needs a little TLC. I know you all are so
great at that.
cooky

Somewhere in the information provided, some of the institutions that
do this protocol suggest that one comes to them for the initial work
up and testing, and then has one's own doctor take it from there.
Several of the stories about people who were first starting and those
with doctors willing to do it didn't seem to have any problems.
I haven't seen anything in particular that seems beyond what any
doctor could do, if they were willing to do it. It all seems pretty
basic stuff to me, simply applied in a way that is not yet standard.
Although, there may yet be something I haven't gotten to yet.
I do not know why doctors are so co-operative, perhaps because I have
been lucky in the doctors I choose to work with.

Please remove me from your group.
Thank-you.

Dear Ones,
As a long-time list member, who has seen this list go through phases of
quiet and more communicative times, (and prefers people sharing), I would
like to make a request.
Please put the topic you are speaking to in your subject line, and feel
free to start a new thread if the conversation meanders to another topic.
Otherwise your wisdom will not be easily accessible for someone searching

I just want to caution women that from personal experience, after
using the "right" hormones, I had estrogen positive breast cancer and
thankfully lived to tell the story. (After genetic testing, it
appears that I did not have the common genes that would be
responsible, so I blame the estrogen). I then spent 5 years
"getting rid" of estrogen (blocking) estrogen with tamoxifen, a
typical anti-cancer hormonal therapy. Miserable drug. I would
advise all women to think very carefully about adding estrogen (even
the best forms) before taking the step. The cancer experience
doesn't end when the tumor is removed but remains a life-long
challenge.
It's not necessary to reply as I may not be able to participate in
the discussion.
I know this is a list devoted to AP. I used antibiotic therapy for a
year and it was the only thing that helped inflammatory arthritis.
--
Esther Warkov, Ph.D
Member OMTA, SMTA
Founder, The Piano Connection
www.thepianoconnection.com
971.255-0388 (Portland)
pianos@...
esther_warkov@...

How many of you have tried azythromyacin? I was on minocycline but became too
sensitive to it and I just started azythromyacin this week. I'm concerned about
using any antibiotic besides mino to treat my RA. Anyone have experience with
zithro? Can I get into remission with this? Will I backslide? What if I don't
herx with zithro, does that mean its not working?
--
Angelia
angeliam88@...<mailto:angeliam88@...

...bill states common incandescent light bulbs will begin being
phased out by 2012...Fluorescent and halogen lights, due to the
ultraviolet rays that they emit, adversely affect many lupus
patients. ...Exposure to ultraviolet light can stimulate the immune
system, causing a "flare." This "flare" can cause many complications
of the illness including kidney failure, intense physical pain,
neuropathy, migraines and a variety of other symptoms. ... In simple
terms this also means that if you don't have lupus the exposure to
ultraviolet light emitted by the new acceptable fluorescent light
bulbs can cause you to manifest lupus or related conditions. ...
* * * * * * * * * * * * * * * * * * * * * * * * * * *
MYCOPLASMA REGISTRY REPORTS
for gulf war syndrome & chronic fatigue syndrome
© 2008 Sean Dudley & Leslee Dudley. All rights reserved.

...i obviously haven't read the introductory material properly, because i never
read about any hormone tests or otherwise. i just read the Scammel book and
took it from there. my doc has prescribed a whole raft of tests for me,
including mycoplasma and chlamydia which i have to get done at a special
laboratory. in a few weeks i go back to see him and possibly start AP treatment.
Leonie

Hi Ethel,
I miss your informative posts!
You used to occasionally remind us of the effectiveness of oil of oregano
and olive leaf extract in dealing with the AP and mycoplasma. I am taking
both right now on the recommendation of my naturopath against flu/colds.
Would you mind reviewing what you used to tell us about these 2 supplements
and rheumatic diseases?
Thanks,
Linda

apparently neither my name neither my e-mail address could be found... and I
forgot my
password...I really don't know what to do.<<<
Hi Muriel,
You might have to send an email to the group list owner and ask them to
remove you from their membership list. This is the address to use from the
group's
homepage:

Maxine was driving down the street in a sweat because she had an important
meeting and couldn't find a parking place. Looking toward heaven, she said,
"Lord, take pity on me. If you find me a parking place I will go to church
every Sunday for the rest of my life and give up sex and tequila."
Miraculously, a parking place appeared. Looking up again she said, "Never
mind; I found one."
**************Biggest Grammy Award surprises of all time on AOL Music.
(http://music.aol.com/grammys/pictures/never-won-a-grammy?NCID=aolcmp00300000002\
5
48)

hi muriel... that's a tough one. maybe someone else might know a better answer

hi Gail, i don't live in NJ (where is that?). i live in Australia.
good luck in Boston. let me know how you go.
best,
Leonie

Hi Robert,
This is a bit like what they're doing out at UCLA for MS. They are using high
dose estradiol
and progesterone in women with MS. It mimics pregnancy and puts the patien into
remission. The first study showed an 80% reduction in brain lesions! That is
so much
better than any med on the market today and it is cheap and safe.
Why not try that with RA? It seems like it should work. I called the center in
Florida today.
The receptionist told me they use prednisone too. Not just hormone therapy.
I've met so
many people with AVN from prednisone, it doesn't sound like a good thing to me.
Who
knows, maybe we'll have a chance at hormone therapy from UCLA one day. Sorry
guys,
this only works on women.
Keep us posted Robert, I'm so happy to hear your wife is feeling better.
Lisa

Hi Lisa,
What's AVN ? Thanks...
Leonie

Welcome Eva,
Compounding means that a druggist takes a natural substance and mixes it
with a base like a cream, oil or troche (if only I could spell) so that it
can be rubbed on the skin or put under the tongue to be absorbed by the
body. Doing it this way does not go thru the gastrointestinal system or the
liver. If meds go thru the gastro system sometimes they are broken down too
much or absorbed in the wrong part of the tract and therefore they do no
good to the person. Everything goes thru the liver that is put in our
mouths and it acts as a policeman to remove toxic waste. If the liver gets
overtaxed it can shut down so compounding saves the liver. Also some meds
can only be administered this way as is our hormones.
The hormones that are compounded are natural and not made in a lab so they
cannot be made into a pill. Some do troches (there's that spelling thing
again) under the tongue or creams rubbed into the arm, inner leg, chest or
tummy.
As for the hormones they are natural like your body makes and do not cause
the bad side effects that the hormones from drug companies cause. The drug
company wants to stop compounding so people will have to buy their toxic
pills.
This is my explanation. I am sure there is a more scientific explanation and
maybe someone here will tell it.
If you have any more questions be sure to ask.
Cooky
Please explain compounding, since I am new at this
Thanks,
Eva

I'm sure this question has been asked many times before. But I can't
tell if I have a flue or a Herx. I teach in a school where people
were all coming down with the stomach flu. Then last night i had
extraordinary joint pain,. Today I have no energy--keep sleeping,
little appetite, feel a little nauseated, had a headache, and have
joint pain but not as much as last night. How do you know?
Linda

Hello everyone with RA, can i ask a question ? I am interested to find out
which joints your arthritis is in, and which joints are worst affected, and how
does that affect your life/mobility etc. Also, what other problems do you have
that are related ? For example i had a type of pleurisy or something for a
while. It was a kind of sharp pain my chest area. Of course there's the
digestive issues too which most of us seem to have.
Best,
Leonie

Lisa and Cooky,
I live in Pennsylvania, and Dr. Thomas Harder at Lankenau Hosptial in
Philly, a rheumatologist, is willing to do AP though he is not
experienced. He started me off. Now I go to H.H. Whitman, in
Berkeley Heights, NJ. a long trip, but I felt I needed someone more
knowledgeable. He is good, and several people on the list go to him.
Linda

I have a friend who needs to find a doctor in north Tx that treats patiets with
antibiotics. I told her about Dr. Kittley in east TX but she said thats to far
for sister, who is in the hospital at the present time with ulcerated stomach
problems from all the RA meds.
Thank you,
Eva Holloway

Hi all; Just wanted to introduce myself, Suzanne, Lynne's little sis.
Don't have any hard evidence of what I have but suspect numerous
ailments. Lynne has been coaching me through stuff, so much to learn. I
do find it all very interesting though. Am greatfull to be able to join
up with you. Off to whitehorse for stress test on Monday, a step in the
right direction, Perhaps leeps and bounds in the near future. Lynne. I
made contact and got much info from another recovering SD'er living in
whtrs. Have a name in order to have hair test done among other good
info. Will catch up with you if I survive the tread mill. Suzanne

Hi Group,
My wife , Marianne, has been battling Rheumatoid Arthritis for over
three years with varying success.
When the side effects from the antibiotics became more and more
problematic, we searched for other
options.
Fortunately, I found the so-called HOLISTIC BALANCED TREATMENT on the
web in a book by Dr.Gary Null. It sounded promising and has all
the credentials of a well researched and tested protocol.
In addition to various publications by credible, outstanding MDs , the
treatment was tested with great success in a double-blind study with 373
patients of all ages. This all goes back to the 60 s and 70 s. The major
researcher, Robert E. Liefmann, MD got
interested in this subject when he observed that women with RA would
lose the disease when they got pregnant
and it came right back after the baby was born. For this reason, he
studied the hormone situation. His treatment consists of taking
sublingual drops of hormone solutions
at various proportions, which are individually adjusted according to the
response.
To make a long story short, my wife tried it and within _three days_ the
swelling of her hands, pain and stiffness started
to fade. She is now two weeks into the program and is practically normal
!! Physical and mental.No major side effects. The only reaction is a
retracing (see Google
retracing/healing) which is sign of healing.
I realize that this is a rather short time of my wife's experience but
in view of the tremendous success, I do not want to wait any longer and make
everybody with RA aware of this phantastic treatment. This quick
response pattern is fairly typical according to the administering MD.
Details and related information is at
http://www.stoparthritis.com/null.html
Good luck,
Robert

Hi all,
I think the article below is the one Lynne referenced in her recent message.
I thought I'd repost it for those new to this forum or who may have
otherwise missed it. El
http://www.positivehealth.com/test/articles.asp?i=1748
<http://www.positivehealth.com/test/articles.asp?i=1748&b=1
Natural Approaches to Leaky Gut
by Neil Wootten (more info)
listed in colon health
originally published in issue 111 - May 2005
Leaky Gut sounds a bit messy, but actually it is not at all. It occurs
where there is hyperpermeability of the gut membrane. The gut should,
indeed, be permeable to a certain degree to allow nutrients through.
Ordinarily, the large intestine acts like a one-way protective sieve
that filters out certain food molecules and peptides. In the case of
Leaky Gut, the one-way gate of the gut open too wide, allowing an
increase in peptide molecules and pathogens, which attract certain cells
of the immune system called phagocytes, letting them pass through the
gut wall into the intestine. It is the presence of these phagocytes that
causes an inflammatory reaction in the gut wall.
I liken it to sieving flour. If you are sieving flour for baking, you
need a fine sieve that will allow the fine flour through and keep the
lumps out. This is how the gut operates normally; it allows molecules of
nutrients through, but stops larger molecules and pathogens getting
through into the bloodstream. When the gut becomes too permeable, the
effect is like trying to sieve flour with a colander - many more lumps
get through. This equates to undigested molecules and particles of food,
along with pathogens getting into the body and setting off an immune
reaction. Such foreign bodies, circulating in the blood, will sensitize
the immune system and often cause adverse reactions to food, showing up
as either an allergy or intolerance. These, in turn, can result in a
bewildering array of symptoms those with chronic illnesses may be able
to relate to:
. Fatigue and malaise
. Arthritic conditions
. Painful muscle conditions
. Fevers of unknown origin
. Food intolerances
. Abdominal pain
. Abdominal distension
. Diarrhea
. Skin rashes
. Toxic feelings
. 'Brain Fog'
. Shortness of breath
. Poor exercise tolerance
Also, whenever this permeability is increased, IBS gets worse.1
How Is It Caused?
Many people suffer from leaky gut and do not realize it. A Leaky Gut can
be caused by anything that damages the lining of the intestine -
infectious microbes, such as bacteria and parasites, a Candida albicans
overgrowth, allergies or even certain prescription drugs, such as
antibiotics and particularly Non-Steroidal Anti-Inflammatory Drugs or
NSAIDs.2 This last is a phenomenon that is a well-known and studied side
effect of NSAIDs. Even single doses of aspirin or of indomethacin
increase cellular permeability, in part by inhibiting the synthesis of
the protective fatty acid prostaglandin. Long-term exposure to NSAIDs
leaves the gut highly inflamed and permeable.
Whatever causes leaky gut, once the condition has developed, it can be
self- perpetuating. The relationship between food sensitivities and the
leaky gut is both complex and circular. In experimental trials reported
in Allergy in 1989, children and adults with eczema, urticaria or asthma
triggered by food allergy show that they have higher gut permeability
than those who don't have these conditions. This indicates that
allergies and food sensitivities may be caused by an over permeable gut.
Interestingly, gut permeability also sharply increases whenever allergic
subjects are exposed to allergenic foods. In all probability what this
indicates is that an increase in intestinal permeability is both
important as a cause of food allergy and also the result of food allergy.
How Does It Affect Us?
There are a number of physical conditions that are well-recognized by
mainstream allopathic medicine as having a relationship to Leaky Gut.
These include inflammatory and infectious bowel diseases, chronic
inflammatory joint diseases,3 skin conditions like acne, psoriasis and
dermatitis,4 and many diseases triggered by food allergy or specific
food intolerance, including eczema, urticaria and irritable bowel
syndrome,5 and even chronic hepatitis.
Leaky Gut is also very much associated with Candida. The Candida
organism can metamorphose in the gut, changing from a simple yeast cell
into a much more harmful 'mycelial' fungal form. Under the microscope,
the cell appears to sprout roots and branches; these burrow their way
into the walls of the intestine, and ultimately can spread throughout
the body, with potentially widespread adverse effect. The National
Candida Society notes that up to 16 million people in the UK may be
affected by Candida-related problems.
Increased gut permeability may play a primary role in causing these
diseases, or it may be a consequence of it. But by causing an immune
system reaction, liver dysfunction and pancreatic insufficiency, it
creates a vicious cycle. In most cases, the role of increased intestinal
permeability in these sorts of patients often goes undiagnosed and
unrecognized.
One of the latest and most interesting theories comes from health writer
Susie Cornell, who postulates that Leaky Gut probably plays a central
role in the development of Multiple Sclerosis (MS). In one research
project of 40 MS patients, all were found to have a number of
nutritional deficiencies, even among those taking supplements. The
patient